Hi nice to hear from you
Hello
My husband was originally diagnosed with Alzheimer's but now changed to frontal temporal dementia in the last few weeks, so still so sure myself. Likewise I think he has symptoms for the last 3-4 years. I am happy to chat and share thoughts
H
Hi nice to hear from you
My husband first stared to go missing once all night in his car the police found him in Kent how he got there he can't say ( car taken off him no longer driving) then he got lost when he went for his bike ride missing over 12 hours found in Surrey ( bike taken off him) we got him a exercise bike which he uses quiet often. Went to the GP and explained that he would wonder off not knowing where he was or how to get back the GP referred us to the memory clinic and after tests the confirmed he had this dementia but no medication for the type he has.
At first l was still working 3 days a week locally so he would pop in a have a cup of tea then go home hopefully but no he would get on a bus a go for miles not being able to get back so eventually l gave up work to be with him all the time and in the last 18 months he has changed a lot, he needs help with every thing dressing, showering, taking to the toilet ( double incontinent ) . At first he used to clap a lot very loud then this changed to tapping on every service now every thing he picks up he bangs down many times sometimes he gets up in the middle of the night and goes down stairs and you will find him banging on the front door handle this can go on for an hour or more then he gets this out of his system then will go back to sleep for a while before he stars again.
We go for walks not as far as we used to , he walks much slower now and a drive in the car every day for nearly an hour which he enjoys. Sorry must go now he needs changing hope to keep in touch