Hi, I’ve been reading through some threads for a while.. Going back and forth about my mum.
I was hoping it wasn’t going to get worse but it has. I don’t know what to do anymore.. The gp can’t help as we are waiting for an appointment at the memory clinic and they said there is a big back log. My mum has had quite a-lot of water infections and I thought it was just that. The hospital sent her home once and said infections markers are raised but it’s normal for her age.. Things got worse and we went back to the gp who said she had an infection. It’s just been a lot of back and forth.
She had a Ct scan as the memory clinic wouldn’t see her without one. It was so hard getting her there. She had one done and it’s showing cognitive memory impairment.
So although that isn’t great I was hoping it would just be that as it doesn’t always mean dementia but my mum has been having hallucinations. Ringing me asking where her daughter was but I was talking to her on the phone? Saying she’s been out with friends. She has friends but she doesn’t like going out so I calmly try to explain she only goes out with family members as she doesn’t like leaving her dogs.
She looks after herself, cooks and cleans! When this happens though it’s like a switch.. she has lost her keys about 3 times but that’s it.
She keeps telling me she’s going outside when she thinks she’s lost one of the grandkids and I’m so scared. We have family but it just seems like me and another family member are on our own as other members of the family live away. I have children and I’m trying to not let it show that I’m scared and worried. Trying to get my mum to doctors appointments and sorting out non urgent appointments. I feel so I’ll and I don’t know how il cope if they tell me my mum has dementia. It’s been a fear of mine for a long time before any of this. I’ve seen what it can do and it’s heartbreaking. I don’t know where to start with any of it or what to do. She’s her normal self most of the time, repeats herself a little but it’s the hallucinations.
I keep telling myself it probably is dementia to prepare myself but then I think maybe it’s just another infection. All her blood tests have come back fine so we have all been happy about that but this is hanging over our heads and the worse bit is mum keeps saying it’s not right is it
I have so much patience with her and try so hard to say the right thing as it must be so horrible. She says when she realises she feels sick. I feel like it’s one big nightmare and I’m ready to wake up now. I feel so alone and I can’t cope with it all. I feel guilty because it isn’t about me but I’m struggling.
My mum doesn’t want to know the diagnosis if it’s bad she said. Is that possible? I don’t want to cause my mum any stress or upset. I don’t know what to expect..
Sorry for it being so long.
I was hoping it wasn’t going to get worse but it has. I don’t know what to do anymore.. The gp can’t help as we are waiting for an appointment at the memory clinic and they said there is a big back log. My mum has had quite a-lot of water infections and I thought it was just that. The hospital sent her home once and said infections markers are raised but it’s normal for her age.. Things got worse and we went back to the gp who said she had an infection. It’s just been a lot of back and forth.
She had a Ct scan as the memory clinic wouldn’t see her without one. It was so hard getting her there. She had one done and it’s showing cognitive memory impairment.
So although that isn’t great I was hoping it would just be that as it doesn’t always mean dementia but my mum has been having hallucinations. Ringing me asking where her daughter was but I was talking to her on the phone? Saying she’s been out with friends. She has friends but she doesn’t like going out so I calmly try to explain she only goes out with family members as she doesn’t like leaving her dogs.
She looks after herself, cooks and cleans! When this happens though it’s like a switch.. she has lost her keys about 3 times but that’s it.
She keeps telling me she’s going outside when she thinks she’s lost one of the grandkids and I’m so scared. We have family but it just seems like me and another family member are on our own as other members of the family live away. I have children and I’m trying to not let it show that I’m scared and worried. Trying to get my mum to doctors appointments and sorting out non urgent appointments. I feel so I’ll and I don’t know how il cope if they tell me my mum has dementia. It’s been a fear of mine for a long time before any of this. I’ve seen what it can do and it’s heartbreaking. I don’t know where to start with any of it or what to do. She’s her normal self most of the time, repeats herself a little but it’s the hallucinations.
I keep telling myself it probably is dementia to prepare myself but then I think maybe it’s just another infection. All her blood tests have come back fine so we have all been happy about that but this is hanging over our heads and the worse bit is mum keeps saying it’s not right is it
I have so much patience with her and try so hard to say the right thing as it must be so horrible. She says when she realises she feels sick. I feel like it’s one big nightmare and I’m ready to wake up now. I feel so alone and I can’t cope with it all. I feel guilty because it isn’t about me but I’m struggling.My mum doesn’t want to know the diagnosis if it’s bad she said. Is that possible? I don’t want to cause my mum any stress or upset. I don’t know what to expect..
Sorry for it being so long.
