Very aware of the differences in Hospital & Social Services between countries, but at the end of the day Mum with AD & Dad with MCI, having hospital appointments with Geriatricians, Memory Teams, Alzheimers Worker and Hospital Needs Assessment Teams, just feels to me as going through the motions , with little or no impact.
We just seem to go around in circles.
I am the main carer for both, predominantly Mum of course.
I get 28 days a year allowance for what is called Carers support to pay for family, friend or external agency to take Mum for respite or come in to her home to administer medication or check up on her if I wasn't there. ( Emergency respite is available and fully funded if required)
Mum gets a mobility card for parking, and a disability allowance for her medical alarm and GP visits and thats it.
Mum & Dad have refused all other help, home help, daycare etc.
There is more practical support out there as Mums AD gets worse but she refuses it.
All these appointments do nothing other than to prove to me how frustrating the system is, and Mum & Dad get asked a million questions, which are never answered honestly of course
Feels like I am just waiting for something to happen to force change.
Not a nice feeling either
We just seem to go around in circles.
I am the main carer for both, predominantly Mum of course.
I get 28 days a year allowance for what is called Carers support to pay for family, friend or external agency to take Mum for respite or come in to her home to administer medication or check up on her if I wasn't there. ( Emergency respite is available and fully funded if required)
Mum gets a mobility card for parking, and a disability allowance for her medical alarm and GP visits and thats it.
Mum & Dad have refused all other help, home help, daycare etc.
There is more practical support out there as Mums AD gets worse but she refuses it.
All these appointments do nothing other than to prove to me how frustrating the system is, and Mum & Dad get asked a million questions, which are never answered honestly of course
Feels like I am just waiting for something to happen to force change.
Not a nice feeling either