Hi everyone, my name is Jill and I've only just been given an initial diagnosis of early onset Alzheimers, i'm 51
It's come as a huge shock and I've been told that to get a 100% positive diagnosis I would be referred to a Research & Development Team for them to do further tests and a PET scan. After hearing nothing, i rang them on Friday and they said that this wouldn't happen and that I would just pick a trial that would be of interest to me !
I'd just like to know if anyone else has been in the same boat and where they went next to get the 100% diagnosis ?
I'm not in denial but there are still so many unanswered questions and this is a HUGE life changer. I've started taking Donepezil 5mg which is being increased shortly as if it turns out not to be Alzheimers then they won't do me any harm.
Hope I haven't waffled on too much.....
It's come as a huge shock and I've been told that to get a 100% positive diagnosis I would be referred to a Research & Development Team for them to do further tests and a PET scan. After hearing nothing, i rang them on Friday and they said that this wouldn't happen and that I would just pick a trial that would be of interest to me !
I'd just like to know if anyone else has been in the same boat and where they went next to get the 100% diagnosis ?
I'm not in denial but there are still so many unanswered questions and this is a HUGE life changer. I've started taking Donepezil 5mg which is being increased shortly as if it turns out not to be Alzheimers then they won't do me any harm.
Hope I haven't waffled on too much.....