Hi, my mum who is now 87 has just been diagnosed with ftd/cbd.
Since diagnosis everything has fallen in to place, I thought mum had turned into an old miserable/selfish/heartless/non emotional old lady,
Mum was diagnosed in hospital in September, sent home, I didn't have a clue about this horrible disease, I wasn't told anything about it, so I went on line, I was totally shocked when I read about it, it was definitely it.
Looking back my mum has had ftd for approx 8-9yrs,
My stepfather passed away 7yrs ago, I have looked after mum ever since, it has been so hard, all the arguments, stress etc etc, I have let mum rule my life, as soon as my sf died she said "stay with me" which I did for months, then I started staying 4nights but there everyday, I really don't know how I haven't had a break down,
Since mum came out of hospital begining Sept I have stayed constantly, although she has carers 4 times a day to change her (as now bed ridden) (cannot do on my own as she had to be rolled, her complete right side of body is dead, her speech has almost gone, & on pureed food & thickened liquids) she relies on me all the time, I have just started leaving her to do shopping, she says "don't be long" & if carers come she constantly asking for me, (we can make out what she is saying) although mum is in bed, she is eating pureed food 3 times a day, cups of tea & couple glass of juice, I am preparing all food, but it is a pain of what to do differently all the time,
She wants the curtains shut constantly, only watches challenge station on TV, all day every day, constantly moaning about something & everything,
I have been ill for a week & a bit, but no sympathy at all, just expects me to carry on, I know it's the horrible ftd, but I really am at the end of my tether, I am neglecting my self, not eating meals just sandwiches, just concentrating on soups etc for mum, I know it's only me that can get myself sorted but it's just feeling guilty all the time for mum, I know I shouldn't but can't shake it off, my children say it's my own fault, but I have to do something as I have days where I resent mum, then I feel worse....
Sorry for all this but need to let it all out,