Feeling let down

Wildflowerlady

Registered User
Sep 30, 2019
1,103
0
The Crisis Team have turned down request for Urgent Referral for my dad the reason being that they had only seen him last month they have seen him before that too in June/Sept this year. They had discharged dad deciding he was 'Stable' they have said they will see him but its not urgent and sounds like they are requesting all other reversible things looked at. The Advanced Nurse Practitioner from dads GP service who did the referral earlier this week is frustrated. The Crisis Team are suggesting dad needs a UTI test and Blood test despite him having a negative test last month and a blood test 17/9/20. The nurse will be pointing this out to them plus he was given antibiotics anyway. It appears they may still think dad is on Risperidone however after a week dad was taken off it due to balance problems and being unsteady they were informed at the time but maybe it wasn't recorded. Dads GP did come and see dad at home and was concerned about his stability and his blood pressure tablet was also stopped. The Nurse says this is not new aggressive behaviour from dad but continuing she is as frustrated as me going round in circles and her opinion is its a progression of dementia not any UTI. The Crisis Team were a bit critical with the Nurse in their correspondence to her saying there had been no physical contact and she hadn't been into dad before making the referral but she said that due to Covid they were not going in unless really necessary and she had obviously had reports from the ASC and family but she has said to me she will see dad if that was a stumbling block to his case. The Crisis Team did suggest that we could call ASC and ask that dads case worker speaks to their ASC Mental Health Social Care Worker apparently they are totally different and they could make a referral urgent if deemed necessary.
Dad was very distressed yesterday he told his lunch carer we had taken all his money out of his account the accusation was against my sister her husband and myself and my partner she naturally felt she had to report it to her office and they called my sister. The lunch carer had found dad with his face in a cushion saying he wanted to die. I didn't see dad yesterday but on my phone call in the afternoon he was making a funny sound and started wailing a bit before calming down obviously now I realise why he didn't say anything to me about his worries over money.
I have emailed the Care Office this morning so that everything was in writing regarding the Crisis Team and spoke with them as well. The Care Company have said they intend to give 28 days notice on Tuesday of next week we did have a good chat.
I think the response from Crisis Team has not gone down well with them either besides which they have given dad the 28 days extra time that Crisis Team had requested they do from their last visit and there has been no change to dads behaviour.
My sister is still confusing to me she appears to have agreed with Care Company that dad does need a CH placement but is indicating to me about us getting dad different carers who might be more specialised in dementia care however the carers that come in according to the Care Company have been trained to deal with dementia so I think sister is going to complicate matters.
Sister has text this morning dad was anxious at bedtime call last night and was unsteady walking upstairs shouting and asking for her and said to carer you may as well kill me. I assume this is what notes said in dads care book that she read this morning she didn't actually say if she had gone round last night or if a carer had called her.
Dad was soiled on teatime call yesterday but that is not unusual he doesn't open bowels on toilet anymore and hasn't for a long time. Sister has been in to do dads breakfast and says dad is very on edge she left for carer to do dads personnel care. Sister is calling me later so that we can have a chat before calling ASC today.
I am getting so stressed now am struggling to sleep or concentrate on anything else I am actually relieved that visitors due this weekend for a few hours are not coming despite us normally enjoying their company.
 

jennifer1967

Registered User
Mar 15, 2020
23,604
0
Southampton
hi wildflowerlady, if im allowed to say, what an awful mess. is your dad picking up the tension in the house although you have said before he is becoming more difficult. are the carers more tense and he picking it up or has he overheard a conversation. could you send an email to ASC and copy in the other relevant agencies then they will all have the same details at the same time then they can ask each other questions and leave you not doing the leg work or is that too simplistic. its trying to find ways to meet the needs of your dad. hopefully your sister will be more helpful when she contacts you later in the day. you need a break from all the toing and froing and a lucky break. take care jenny
 

Sarasa

Volunteer Host
Apr 13, 2018
7,279
0
Nottinghamshire
I'm so sorry to hear that @Wildflowerlady. Crisis Intervention team seems a bit of a misnomer. The care agency quitting sounds like a crisis, and team don't seem keen on intervening.
I haven't had experience of your particular problem, but I'm sure someone will be along with some good suggestions shortly. In the mean time don't forget to look after you, and if your father becomes aggressive when you are there call 999.
 

annielou

Registered User
Sep 27, 2019
1,917
0
Yorkshire
Oh no what an awful situation, it's like pass the parcel to never stopping music with your dads care being the parcel I'm so sorry you are all going through this. I hope the chat with your sister later brings you both together on things and I hope to goodness somebody blooming does something for your dad soon. ? ?
 

jennifer1967

Registered User
Mar 15, 2020
23,604
0
Southampton
its friday afternoon again and agencies are home for the weekend leaving you to cope on your own over the weekend.please keep yourself safe although it will be hard to phone police about your dad, maybe thats what it needs. maybe if the carers feel so under threat, they should be phoning then there would be a crisis to answer to. whilst the carers keep coming and you picking up the slack, the crisis team can keep backing away. how much more does it take before one of them commits themselves to making an awful situation better for your dad, sister and most of all you who is already a full-time carer to your partner. dont understand whats so difficult. stay safe what has to happen before a crisis is declared?
 

Members online

Forum statistics

Threads
139,064
Messages
2,002,825
Members
90,839
Latest member
Grandaughtercare