Hi all, not really sure how to start but my Dad is at what I can only call late stage Lewy Body Dementia. That in itself is enough but we were only given his diagnosis in March and was put into a CH pretty much straight away and already he has declined so much. I was contacted by the CH on Sunday to advise that he had to be sent into A&E with a UTI, problems passing water etc and asked if they wanted me to go with him. He is bed-bound, has very little communication left apart from increasing in volume vocalisation I was in A&E with him on my own for 6 hours it was one of the hardest things I have ever had to do, so far. He was so distressed from the minute we got in the ambulance until we got him back in the CH and I think it finally sunk in how far down the line he is. He's suffering every single day and I dont know how long he/his body can go through this. The CH are already trying to get him referred back to Mental Health as the medication they give him for his anxiety does not work anymore. I feel so helpless and don't know how to help anymore x