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Discussion in 'I care for a person with dementia' started by spuddle, Jan 8, 2015.
im struggling. is this alz related. any advice please. will post more when I clean the poo
my niece had alzheimers and she became doubly incontinent. She would have accidents and try to hide it if she realised what she had done in places you would never imagine. It wasn't easy to cope with so I wish you the best of luck.
Recently had diarr caused by antibiotics.....went away when the tablets finished
Doctor suggested oral hydration sachets to prevent dehydration are a must
I gave a half tablet of Imodium at night for the diarr
Go to Gp and ask for help from incontinence nurse . the waiting time for us is 12 weeks but might be better where u r
In meantime look on the tena web site for ideas about pads etc
If continues then get a reassessment from social services since this is a major impact
My OH is doubly incontinent. If it looks too liquid it might be overflow constipation which can be helped with gentle laxatives.
thanks for replies. I need to take a deep breath and cope with this.
before Christmas mam was in hospital after a fall in bath and pooing herself. had loads of test in hospital both for poo and infection. after all these test we didn't get any true results for anything.
mum has been a bit ok and a bit not ok. got her in 'big girls pants' bit of poo here and there but last night it went a bit wonky again.. she is so ok in every other respect v
but when we look at her pants she says.... oh dear I didn't mean to do that. and then she asks why im looking at her pants..... OH HELLS BELLS. could do with advice from from anyone who has been there. thanks. pollyx
Yes it can be part of the disease process.
My dad is incontinent and wears pully ups. He still manages to spread poo from here to Kingdom come. He has bee putting it down the plug hole and managed to block the sink. I had to take the pipes apart today to deal with it. There was lots of limescale that was puttied together with poo, this is what had blocked the sink. No chemical or wires would shift it. Oh my gosh.... It smelt baaaad. Anyway, all done and clean again now. I wonder what delights await me tomorrow!!!!
My goodness, Susy, you deserve a medal for this heroic work! It's posts like this though that make me dread the future with my OH...and yet I know the only way forward is one day at a time.
Not everyone has the same experience so maybe you will get away with it.
Today we had more incidents but all sorted again now. What I find so hard is the dementia stripping the sufferer of dignity. I do whatever I can and to be honest he doesn't actually seem to care. I guess he simply forgets what's happened so I must take comfort in that.
This is the only part that makes me feel bad. Over the last month mum has had problems with this. I have to keep searching for messed clothes. She calls me when major accidents happen a nd that is now about three times a week but on new years eve I don't think any part of the Wet room
or her clothes had been missed. Her speech was slurred and did not make any sense. Called doctor who said maybe mini stroke or deterioration of as. Would see about getting scan and ask memory nurse to come. Still waiting and still clearing poo and finding dirty clothes. Now have shares in vanish. She will not use pads have padded knickers.
This is the only part that makes me feel bad. Over the last month mum has had problems with this. I have to keep searching for messed clothes. She calls me when major accidents happen a nd that is now about three times a week but on new years eve I don't think any part of the Wet room or her clothes had been missed. Her speech was slurred and did not make any sense. Called doctor who said maybe mini stroke or deterioration of as. Would see about getting scan and ask memory nurse to come. Still waiting and still clearing poo and finding dirty clothes. Now have shares in vanish. She will not use pads have padded knickers.
I might be able to help.
I always described my wife as doubly incontinent as that is how she would have been described medically, and the continence specialist to whom we were referred assumed that this would now be a permanent symptom of the condition. Urinary incontinence usually strikes first and those who believe in 'the stages of dementia' put it in the later stages and remark that late stage dementia often involves double incontinence.
I've always thought it odd that for Sue things developed the other way round. Like so many people, Sue had a longstanding tendency towards constipation. So when, four years ago, she started to have soiling problems, we used any number of laxatives and other drugs which various medics swore by. They turned out to be worse than useless. They simply complicated the issue and, whatever dose of whatever drug you used, you never really knew if there was any progress. Sometimes there seemed to be, but then you were suddenly back to square one.
Fast forward: For about a year now, the problem has almost disappeared. Sue has empties her bowels nearly every day and nearly all the time 100% goes down the pan. After months when there were absolutely no 'accidents' I now find some poo on the pad when she wakes up about once a fortnight. This only happens after she has had a day when she hasn't 'performed', but doesn't always happen after such a day. Believe me, after our previous experience I find I can cope with this without batting an eyelid.
The improvement hasn't been achieved suddenly of course. There have been false hopes in the past but overall things have gradually improved over time.
How has this been achieved? So these are my tips, mostly discovered by trial and error:
1) Regular exercise, e.g. we aim to walk at least 5 miles a week whatever the weather and we usually exceed this target.
2) Vegetables are very important. We tend to eat a lot (we don't eat meat). Some vegetables are extremely effective - carrots, sweet potatoes, squash, onions all work well for Sue so I concentrate on these.
3) Insoluble fibre, particularly wheat bran and anything that contains it, has to be treated with caution as it can have exactly the same unwanted effect as the drugs.
4) Soluble fibre, in particular oat bran, is great and much of the improvement can be traced back to when we started to have porridge for breakfast - real porridge not instant refined muck.
5) We discovered that immediately after the evening meal is the optimum time (for Sue) for a successful visit to the loo.
6) Before every meal I give Sue fruit finger foods - mango, melon, apple, pears. I've always understood the importance of fruit but this fairly recently introduced tactic means that Sue eats more fruit than she did before.
7) Obviously, it's also important to keep hydrated and this is sometimes difficult - Sue has to be watched to avoid spills and she sometimes drinks very slowly.
I'm sure none of the above is particularly novel. And what has worked for Sue may not work for others but I hope that they may be of some use to someone.
I've realised that it is very important, if you embark on or develop such a regime, to hold your nerve. One dose of any kind of laxative can screw things up for a considerable length of time. Bin them!
I also avoid some foods. Raspberries, which Sue used to have every day because she liked them, were a definite culprit, as I eventually realised.
N.B. I am not suggesting that this precise regime will suit everyone. I think you have to do your own experimenting. But, believe me, it's worth it. it is no exaggeration to say that it has vastly improved our day-to-day lives.
thanks so much for your input and suggestions on how to manage this. mum seems to have accepted wearing her 'big girls pants' but she was really upset a couple of days ago when she was literally smeared in poo. Its heartbreaking.
I've just been researching and come across 'anal plugs' for bowel incontinence. Basically they sound similar to tampons but they go up your bum and can be worn for upto 12 hours.
anyone had any experience of these. the info warns that they are not for everyone, but i feel like at least trying them.