Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support.
It can be particularly difficult when you're living with - or worried about - a rare dementia, or when you care for someone who is. Alzheimer's is the most common type of dementia, but many are less recognised. If this affects you, you can end up being unsure about where to go for information and support.
Do you have any questions about rare dementias? If so, they will be answering your questions on Tuesday 3 March between 3-4pm.
In their own words:
Rare Dementia Support (RDS) is a UK based service provided by the UCL Dementia Research Centre (DRC). RDS works to support people affected by six rare dementia conditions: Familial Alzheimer’s Disease (FAD), Frontotemporal Dementia (FTD), Familial Frontotemporal Dementia (fFTD), Posterior Cortical Atrophy (PCA), Primary Progressive Aphasia (PPA), Lewy Body Dementia (LBD).
We are here to advise people living with these dementias, and their families and give guidance on living with a particular disease diagnosis. Our aim in our work is to help people affected by one of these rare dementias feel supported and valued.
Not able to make it? Please feel free to post your question on this thread, or if you prefer, send your question to us at firstname.lastname@example.org and we’ll be happy to ask it on your behalf.
We hope to see you here on Tuesday 3 March