Feeling very low today. My husband John, (AD six years), was in contact with the Norwark virus in May, and is going downhill rapidly. Until then, he was doing so well, his only real problems were with language and communication. Even the consultant said in January thet he was much better than he would have expected after six years.
Since May he has had problems with bowel continence, and a fortnight ago he suddenly started wetting the bed. I sometimes have to change him four times in the night.
I contacted Alzheimer's link worker and social services -- no result so far. Link worker says it's not a mental health problem. How she can say that I don't know. I know that Norwark is not her problem, but we would be able to cope with that if it weren't for the AD. SS just don't ring back. I just feel so hurt and abandoned.
I've bought him some incontinence pants from Boots, which surprisingly he is happy with. In fact, they've helped a lot, because they've reduced his anxiety about bed-wetting. I also bought a mattress protector, it nearly killed me squeezing a king-sized mattress into it, (I've got a bad neck). We're coping, but I just feel we should have had some help.
John has anappointment to see a consultant next Thursday, and I have to give him a suppository before he goes. The thought fills me with horror. He'll hate the indignity.
Sorry, this is just a big moan. I know you can't help me, but I'm depressed and exhausted.
Skye
Since May he has had problems with bowel continence, and a fortnight ago he suddenly started wetting the bed. I sometimes have to change him four times in the night.
I contacted Alzheimer's link worker and social services -- no result so far. Link worker says it's not a mental health problem. How she can say that I don't know. I know that Norwark is not her problem, but we would be able to cope with that if it weren't for the AD. SS just don't ring back. I just feel so hurt and abandoned.
I've bought him some incontinence pants from Boots, which surprisingly he is happy with. In fact, they've helped a lot, because they've reduced his anxiety about bed-wetting. I also bought a mattress protector, it nearly killed me squeezing a king-sized mattress into it, (I've got a bad neck). We're coping, but I just feel we should have had some help.
John has anappointment to see a consultant next Thursday, and I have to give him a suppository before he goes. The thought fills me with horror. He'll hate the indignity.
Sorry, this is just a big moan. I know you can't help me, but I'm depressed and exhausted.
Skye