My mother has now been in the retirement home for 5 months. Her deterioration has been dramatic - or maybe we didn't know how bad things were before she went there. She cries, grizzles and sometimes screams about the pains in her back. She has arthritis in her back but her doctor (a new one since she went into the home) stays that all the tests (there have been many) have been done and there is no way that she is in that much pain. So, it's all in the mind. The CPN was coming in about every four weeks and tweeking the medication. Anti phsycotic and painkillers, then no anti phsyc and anti depressants instead. We are no way forward. The doctor doesn't want to know - just tells her to concentrate on something else and the CPN has left her job and her departing words were "she will be allocated to someone else". The care in her retirement home is fine, no complaints there, but they are just as much at a loss as us to know what to do about her distressed state. So, we have decided today to pay privately to see a consultant (I suppose a geriatric psychiatrist) to see her and sort out how to treat her mental condition. I understand that this involves her being taken into a hospital or unit, all her drugs being stopped, and then starting from the beginning again. It will cost. But the money she has is set aside for her retirement home anyway. The sooner that goes the sooner the state take over, so in effect it costs us nothing! Ridiculous!!!. Do you think this is the right course of action. Or are we still not accepting this horrible disease and fooling ourselves.