And that's what worries the Alzheimer's Society the most. The dementia charity says the current system of paying for care for people with dementia is a "confusing mess".
It warns that many people are unaware of the benefits they are entitled to and the system of means-testing for social care leads to thousands of people struggling to access the care they need.
Benefits available
There are three main types of benefits you can claim if you suffer from dementia:
* Attendance allowance: You have to be over the age of 65, it's not means-tested and you could get up to £67.
* Disability living allowance: You qualify if you are under the age of 65 - it too is not means tested and you could get up to £67.
* Money for carers: For this, you have to be caring for someone with dementia for more than 35 hours a week and you could receive up to just over £50.
According to the current rules, social care means help with tasks such as washing, cooking or using the toilet and is not paid for by the government unless you qualify.
It's not the same as health care, which could involved administering medicine and is paid for by the NHS.
The Alzheimer's Society calls this an artificial divide and carers such as Susan Doggett believe this is unfair.