Just wondered if anyone has been awarded CHC NHS Funding for a family member with Lewy Bodies Disease? My mum is in the advanced stages and due to the nature of the disease i feel she scores Severe for communication and Behaviour. Due to the two being interlinked mums behaviour can vary from hour to hour and day to day, so is unpredictable but frequent and can be severe. Has anyone any advice of getting funding specifically for Lewy Bodies due to the unpredictable nature of the disease and its complications in fluctuations in cognition and emotion. My mum is often very distressed when she is lucid as she realises what is happening but at other times she just sits with her eyes closed and tries to block out everything around her as its so distressing. She is an EMI home.