Sadly we have been in this same position. A supportive GP will be a great advocate. The consultant that diagnosed your Mum again is a good point of contact, I emailed concerns to GP/ Complex Care Team/ Social Services; I was a complete pain by updating them continually with issues.
Admiral Nurse a great point of contact & gives me a chance to vent & useful advice.
Age UK as well helped with form filling & knowing what paperwork needed to be filled, also what financial help is available.
Meanwhile this site has a wealth of experience & knowledge & the phone support amazing.
Reaching out & asking for help was the hardest bit.
Every council has a Volunteer Service that can provide support & help. In fact there was soo much more out there than I realised.
Your local GP surgery will also have a support network, & it’s worthwhile asking.
Again local church will have a volunteer sitting service. A hours company / companionship for your loved one is helpful.
I found a lovely cleaner who came in for an hour a week , again a short time but any longer & Mum would become over tired.
Please don’t laugh but even a window cleaner, someone to mow the grass, all of these folks enriched Mums life- though she was adamant that it wasn’t necessary.
Ask about meals on wheels service - our local GP practice has a League of Friends who have volunteers delivering meals. My daughter ( 24) volunteers for this service & the 5 mins chat, banter & laughter while delivering the meal is enough to lift , & stimulate.
The Vicar used to bring communion once a fortnight, & chat. Pastoral care can play a part in supporting your loved one.
Mum resisted all initially , but if I’m honest it was my reaction to her resistance of accepting help that hindered me. Once I just shrugged & said well we could just try once it & see what you think … & if you don’t like it we won’t do that again - that worked!
Mobile chiropidist another service provider that every 6 weeks visited.
I know it’s not perfect but each of these services will provide a moment of companionship & help you alleviate worry’s
Best thing we ever did was instal ring doorbell system - runs off rechargeable battery but you do need broadband . We got broadband installed & the provider did a phone & broadband package for the same price as a landline only!
I know who visits , calls as a notification pings on the phone. It’s amazingly easy to set up - & again if you are unsure & need help the above community support networks will be able to help.
Don’t take no as a definitive answer from someone which dementia.
And ask for help … what’s the worst that can happen …
Lastly I am one of those hyper- sensitive folks who takes everything to heart as a personal slight….. it’s easy to let all of this dominate your life & time.
Nothing is perfect but each bit of help however small is better than nothing
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