My Mum has been on Aricept for 12 years and we feel it has definitely slowed down the dementia progress. On a recent visit to clinic her consultant wanted to take her off it as he felt it was no longer having any effect. She is declining but very happy and settled, we were concerned and asked if she could have the dose reduced instead to enable us to monitor any effects, to which he agreed. We then went on holiday (much needed as we care for my Mum) on our return he had stopped the Aricept completely and in the last 3 weeks she has become very disorientated and agitated. After a fight he has put her back on 5mg, but I'm worried she won't get back to where she was. We are really upset as a family and wondered if anyone else had experienced this. We feel like making a complaint as he has gone against everything that we agreed........ and caused her so much distress.