Thanks for your responses
I have been told that in order for Aaron to get Aricept our consultant would have to put it to the trust board and that he couldn't be prescribed it without it being authorised ..
Aaron was firstly diagnosed with Parkingsons with lewy body, then I was told earlier this year that Aaron had CJD. Now the consultant has said that CJD is less likely as his SPECT scan showed to be more typically Alzheimers related, although it is incredibly aggressive, and it is either a rare form of Alzheimers (as previously stated,) Parkinsons disease dementia conplex or both parkinsons and alzheimers, although I haven't heard of someone having both before. Either way, his prognosis is not good, our GP seems to think that Aaron only has 3 months left as he has deteriorated so fast.
When the consultant told me Aaron most probably had CJD he also asked permission to take his brain when he dies for research. The consultant seems to be more interested in Aaon when he dies than while he's alive. As yet I have not given consent and do wonder if this may be some of the problem with the consultant
In one year Aaron has gone from being able to do almost anything to now not being able to walk unaided (he now has a wheelchair), chew food or swallow easily and he's urinary incontinent. He also has terrible hallucinations and his speech is slurred a lot of the time. He has marked cognitive impairment
All in all, no-one really seems to know what is wrong with him, I'm just clutching at anything that could make a difference to the dementia side and perhaps slow it all down