Hi my name is Charmaine
My future mother in law has mixed dementia and Alzheimer’s, she has 3 sons (middle one is my fiancé) Di lost her speech some time ago and as a family we’d been caring for her at home with carers popping in 3 times a day. She lived alone and the boys were in process of social service help and looking at care homes. Sadly 2 weeks ago Di fell down her stairs , carer found her, she had fractured skull and multiple bleeds on her brain. There is a DNR in place , drs prognosis was not good and she was put on end of life care , all treatment removed. we were told days / weeks , a week after fall she was transferred to a hospice , again we were told days/weeks another week has gone by and yesterday dr said hours/days . Us as a family have been feeding her yoghurts, custard and today she had a bit of readybrek. She will drink aswell. We believe she has had mini strokes as one side of her face alga’s dropped . She doesn’t talk at all anymore (only used to say yes and no) but at times she’s very aware. She’s not been out of bed since the accident and she’s lost so much weight, looks so different. She doesn’t appear to be in any pain and seems quite settled which is a blessing. Obviously as a family we don’t want her to pass but at same time it feels like a complete emotional rollercoaster. Being told to expect her to pass in days but she seems like she could go on forever. We’ve all paused our lives to keep vigil with her 24 hours a day but we all work etc so have had to go back to normal life although nothing is normal as we’re all still going to stay with her on a rota basis. I guess I’m just asking for advice , as a family we are just lost
My future mother in law has mixed dementia and Alzheimer’s, she has 3 sons (middle one is my fiancé) Di lost her speech some time ago and as a family we’d been caring for her at home with carers popping in 3 times a day. She lived alone and the boys were in process of social service help and looking at care homes. Sadly 2 weeks ago Di fell down her stairs , carer found her, she had fractured skull and multiple bleeds on her brain. There is a DNR in place , drs prognosis was not good and she was put on end of life care , all treatment removed. we were told days / weeks , a week after fall she was transferred to a hospice , again we were told days/weeks another week has gone by and yesterday dr said hours/days . Us as a family have been feeding her yoghurts, custard and today she had a bit of readybrek. She will drink aswell. We believe she has had mini strokes as one side of her face alga’s dropped . She doesn’t talk at all anymore (only used to say yes and no) but at times she’s very aware. She’s not been out of bed since the accident and she’s lost so much weight, looks so different. She doesn’t appear to be in any pain and seems quite settled which is a blessing. Obviously as a family we don’t want her to pass but at same time it feels like a complete emotional rollercoaster. Being told to expect her to pass in days but she seems like she could go on forever. We’ve all paused our lives to keep vigil with her 24 hours a day but we all work etc so have had to go back to normal life although nothing is normal as we’re all still going to stay with her on a rota basis. I guess I’m just asking for advice , as a family we are just lost
