This is the thing about TP, you can say it like it is, but that does change as the person you are caring for changes. My feelings a year ago after realising he was not well followed by diagnosis were different from how I feel now. Then I didn’t think I could carry on, felt trapped imprisoned, wanted to escape and had ugly thoughts. Now I have worked out how to survive and live a different kind of ‘we’ from our previous life. My relationship with him has changed, to more like parent and child. I know that it hasn’t changed for him but I can’t do anything about that. Interestingly my relationship with my mother was reversed because I had to be the mother to her child because of her difficulties, not dementia though. So I have always had to assume responsibility although dementia has tested me to the edge.
I am enjoying the Understanding Dementia course because it is abstract and at an arms length from the coal face. It has irritated me in some ways because of that although I am only at the beginning, because it all seems so rational quite unlike dementia which is the opposite.
I am enjoying the Understanding Dementia course because it is abstract and at an arms length from the coal face. It has irritated me in some ways because of that although I am only at the beginning, because it all seems so rational quite unlike dementia which is the opposite.