Advice on how to make this situation any easier? Helping my boyfriend whose dad has suspected dementia for the past month!

lake_disappointment

Registered User
Jul 23, 2022
25
0
Hey guys

Was just looking for any advice you might have to help me and my boyfriend and his dad who seems to have dementia.


We don't have a diagnosis yet, we're waiting for an appointment at a memory clinic after being referred from the GP. We have just found out his dad has private health insurance so hoping to get in sooner.


Anyway, basically the dad can't seem to do much himself. He's ended up staying at my boyfriend's house and I'm wondering how long this is going to go on for. My boyfriend's brother seems to have shirked responsibility onto my boyfriend basically. The dad is very slow and definitely getting very frail, despite being a fairly fit 70 yr old. He is always losing stuff, has had some hallucinations, won't drink water. My bf cooks him lunch and dinner as he can't seem to do that. Thankfully he is still washing and going to the loo himself, though has difficulty dressing (t-shirts inside out sorta thing, sometimes walking round naked at night). He has tried going out for walks by himself but immediately gets lost. He gets lost in my bf's two bed flat and has a tendency to wander into my bf's room. I put signs up to try and help but still does it - the dad fell asleep in my bfs bed a few nights ago and then wandered in to his bedroom twice last night at 3am. He is also very paranoid and resistant to anything, insisting he wants to buy a 6 bed house near to my bf, once he's sold his old house. He is constantly with us and we're not getting much time alone. We are thinking it is probably dementia, and after talking to a friend of mine who is a doctor she reckons it is too. Obviously not 100% certain though.


My bf suggested getting carers (though worded as friends), more to give him a hand, but his dad was very much unimpressed. My bf then suggested maybe the 6 bed house wasn't the best idea if he gets lost at his. He got a bit annoyed and then started going on about the doctors going after him and how they are in a conspiracy theory. He is also terrified of being put in a home. My bf and his brother doesn't have POA and is scared to even bring it up now while his dad is so paranoid.


I don't know what to do but I'm scared. I don't know how to make this any easier and how to get any time to ourselves! Especially as I know this is a long, drawn out disease - is this gonna be us for the next 4+ years? Just getting worse and worse?


I'm hoping his brother might help a bit but I don't know how likely it is. His brother insists him and the dad don't get on at all and he also has a kid so can't do as much. His wife seems a bit more understanding but idk how likely it is. There's also talk of the dad staying at his own brothers, but there is worry that we're shifting him about a lot.


Is there any way of trying to get his dad on board with carers on the house? Or are we just going to have to put up with him until his dad is seriously ill? Will it be any easier after a diagnosis? I am imagining his dad to be resistant to the bitter end at this stage. I am scared of how on earth we will ever get time to ourselves. If anyone has any tips or advice on making this any easier, please let me know. And also how to communicate to resistant parents!

Thank you so much!
 
Last edited:

Grannie G

Volunteer Moderator
Apr 3, 2006
82,548
0
Kent
Welcome @lake_disappointment

If you check through the information on the link below it might help you know where to start.


You can also apply to Social Services for an assessment for your boyfriend`s dad but be prepared to wait. The sooner you get an application in, the better.

If you want to try to get some care in while you are waiting you could present it as a help for you and your boyfriend with housework etc.


I think this is enough for now but if you have any further questions there are many here ready and willing to offer support.
 

canary

Registered User
Feb 25, 2014
25,462
0
South coast
Hello @lake_disappointment
I recognise every single one of the things you have mentioned, but obviously we cannot diagnose on here. Loss of insight is actually a very common symptom of dementia, so that they do not realise that they can no longer do things.
I would recommend that you read around the forum to get an idea of what is involved and how people deal with dementia. Do also ask questions, seek support or even just have a moan
xx
 

Bunpoots

Volunteer Host
Apr 1, 2016
7,413
0
Nottinghamshire
Hi @lake_disappointment welcome from me too.

With regard to getting LPA I remember someone on hear managing to persuade a reluctant parent by having everyone fill in an LPA form and choose attorneys - so the PWD was listed as an attorney for the partner or child (I don’t remember which). Obviously only the LPA for the PWD was registered. It can all be done without involving a solicitor and will save a lot of expense in the future if your boyfriend’s dad can be persuaded it’s a good idea.