Hello
I’m just appealing to anyone who has a loved one with Ftd and has insight into stages and symptoms, I’ve used the forum in the diagnosis stages for my husband and it was invaluable. He has BV FTD and is 53 diagnosed last Winter but symptomatic for a year before that. I’m beginning to notice more regular pacing, sundowning, changing clothing several times a day, eating more carbs and sweets and is verbally challenging when the food isn’t ready quick enough. No self awareness and personality has changed immeasurably Personal hygiene needs full prompting and wandering is happening, will come back with persuasion but this is occurring regularly. He is being treated with benzodiazepines due to moods and challenging behaviour. Sometimes feels like I’m a dealing with someone with hyperactivity and then can be appeased with watching a Disney movie. Speech is deteriorating and has some stock words / answers he relies on as he cannot use fluid language now. Only salvation is he sleeps at night but this can fluctuate recently with early mornings. Would you describe this as early to mid -I’m beginning to wonder as I feel he has a fast progression. I am about to look at respite due to this and managing a family and teenage children at home. Do people have any experience of this with BV FTD ? As in could respite make his world even more confusing ? Any help or words much appreciated, such a stressful journey !
I’m just appealing to anyone who has a loved one with Ftd and has insight into stages and symptoms, I’ve used the forum in the diagnosis stages for my husband and it was invaluable. He has BV FTD and is 53 diagnosed last Winter but symptomatic for a year before that. I’m beginning to notice more regular pacing, sundowning, changing clothing several times a day, eating more carbs and sweets and is verbally challenging when the food isn’t ready quick enough. No self awareness and personality has changed immeasurably Personal hygiene needs full prompting and wandering is happening, will come back with persuasion but this is occurring regularly. He is being treated with benzodiazepines due to moods and challenging behaviour. Sometimes feels like I’m a dealing with someone with hyperactivity and then can be appeased with watching a Disney movie. Speech is deteriorating and has some stock words / answers he relies on as he cannot use fluid language now. Only salvation is he sleeps at night but this can fluctuate recently with early mornings. Would you describe this as early to mid -I’m beginning to wonder as I feel he has a fast progression. I am about to look at respite due to this and managing a family and teenage children at home. Do people have any experience of this with BV FTD ? As in could respite make his world even more confusing ? Any help or words much appreciated, such a stressful journey !