24 Hour Specialist EMI Dementia Nursing Care...

Miniminx55

Registered User
Jul 23, 2020
15
0
Hello
Its been a very long time since I have been on here to post (December 2020) mainly because my poor 84 year old father has been evicted from two care homes with his Alzheimer's (no support or anything from Social Worker), he has had pneumonia and hospitalised for 6 days in one home (6 days after arrival despite me telling them he was not right and please get a GP to see him by both myself and the social worker) and then the other home isolated him for 14 days on arrival and he did not cope then put him in his final room in an ancient bed that was not fit for purpose as he required an air mattress and when trying to get to the toilet in the early hours his zimmer slipped on the floor and he lost his balance falling onto a screw sticking out of the ancient metal bed. Paramedics called as it would not stop bleeding and 2 weeks after the initial wound it was infected (no surprise) and he was rushed in the early hours into hospital by ambulance with signs of sepsis. A few days after starting the antibiotics etc he had a scan and they found that he had Endocarditis (an infection of the aortic valve in his heart that required 4 weeks of antibiotics specific to this infection on the cardio ward 6 times per day by IV. He has now been moved to a Rehab Hospital but they feel he will not mobilise again due to the Alzheimer's and that he is in fact fit for discharge after only a week. He has been assessed as requiring 24 hour specialist EMI dementia nursing care and that this is usually within a unit in a care home and he is now apparently in the advanced stages of his Alzheimer's Dementia. When he left his home on the 27th November 2020 he was fully mobile with a rollator, still caring for his 3 cats everyday, still able to chat well and communicate (memory not good but not horrendous) and all in all after all the infections (he has had three chest infections as well after the pneumonia) and the isolation in his room in both homes as he was not given time to settle and feel confident to join in he is now nothing like the man he was and I am beyond broken. I am taking this stress, upset and fear all on my own as my brothers are not interested and I also have my mother in another Nursing Home locally to care for and support. I hate to admit I am so depressed and crying all the time this week since Dad was moved as he is again struggling to settle and he is taking his anger out on me on the telephone and the two visits a week for one hour that I can have. I do not know what way to turn and I get little support from the Social Worker as she is in Wiltshire (my father lived in Wiltshire so they are funding his care in Dorset/Somerset). I have so many other issues to sort out including the sale of the bungalow he owned half of with the late woman he lived with (not as a couple), difficulties with her Grandson who is the beneficiary for her share, other financial matters its a minefield as LPA and in that I have little to no time to care or support myself with my own health issues and I am at breaking point. I have now spoken to Adult Social Care in Dorset Council for some advice on this type of home in Dorset (they are apparently few and far between), the Finance Team at Wiltshire Council have totally mucked up his financial situation as they are stating he owns a property whereas he does not own it outright so how can they base their figures for the property and what his contribution is....I am just beyond being able to cope much longer and I feel broken, guilty, stressed, frightened about losing him my emotions are all over the place. Does anyone have any advice they can offer in respect of this EMI business etc and also how do I get myself back on my feet when I am getting no Carer support from the Social Work team in Wiltshire and of course Dorset is not interested as Wiltshire are funding him. I need help any help anyone can offer. I am so sorry to witter on and be such a nuisance thank you x
 

kindred

Registered User
Apr 8, 2018
2,938
0
Hello
Its been a very long time since I have been on here to post (December 2020) mainly because my poor 84 year old father has been evicted from two care homes with his Alzheimer's (no support or anything from Social Worker), he has had pneumonia and hospitalised for 6 days in one home (6 days after arrival despite me telling them he was not right and please get a GP to see him by both myself and the social worker) and then the other home isolated him for 14 days on arrival and he did not cope then put him in his final room in an ancient bed that was not fit for purpose as he required an air mattress and when trying to get to the toilet in the early hours his zimmer slipped on the floor and he lost his balance falling onto a screw sticking out of the ancient metal bed. Paramedics called as it would not stop bleeding and 2 weeks after the initial wound it was infected (no surprise) and he was rushed in the early hours into hospital by ambulance with signs of sepsis. A few days after starting the antibiotics etc he had a scan and they found that he had Endocarditis (an infection of the aortic valve in his heart that required 4 weeks of antibiotics specific to this infection on the cardio ward 6 times per day by IV. He has now been moved to a Rehab Hospital but they feel he will not mobilise again due to the Alzheimer's and that he is in fact fit for discharge after only a week. He has been assessed as requiring 24 hour specialist EMI dementia nursing care and that this is usually within a unit in a care home and he is now apparently in the advanced stages of his Alzheimer's Dementia. When he left his home on the 27th November 2020 he was fully mobile with a rollator, still caring for his 3 cats everyday, still able to chat well and communicate (memory not good but not horrendous) and all in all after all the infections (he has had three chest infections as well after the pneumonia) and the isolation in his room in both homes as he was not given time to settle and feel confident to join in he is now nothing like the man he was and I am beyond broken. I am taking this stress, upset and fear all on my own as my brothers are not interested and I also have my mother in another Nursing Home locally to care for and support. I hate to admit I am so depressed and crying all the time this week since Dad was moved as he is again struggling to settle and he is taking his anger out on me on the telephone and the two visits a week for one hour that I can have. I do not know what way to turn and I get little support from the Social Worker as she is in Wiltshire (my father lived in Wiltshire so they are funding his care in Dorset/Somerset). I have so many other issues to sort out including the sale of the bungalow he owned half of with the late woman he lived with (not as a couple), difficulties with her Grandson who is the beneficiary for her share, other financial matters its a minefield as LPA and in that I have little to no time to care or support myself with my own health issues and I am at breaking point. I have now spoken to Adult Social Care in Dorset Council for some advice on this type of home in Dorset (they are apparently few and far between), the Finance Team at Wiltshire Council have totally mucked up his financial situation as they are stating he owns a property whereas he does not own it outright so how can they base their figures for the property and what his contribution is....I am just beyond being able to cope much longer and I feel broken, guilty, stressed, frightened about losing him my emotions are all over the place. Does anyone have any advice they can offer in respect of this EMI business etc and also how do I get myself back on my feet when I am getting no Carer support from the Social Work team in Wiltshire and of course Dorset is not interested as Wiltshire are funding him. I need help any help anyone can offer. I am so sorry to witter on and be such a nuisance thank you x
You are certainly not a nuisance and are coping with so very much. Please consider engaging a private social worker. Google it for your area. Kindredx
 

Bunpoots

Volunteer Host
Apr 1, 2016
7,356
0
Nottinghamshire
That’s a lot to have to cope with @Miniminx55

It’s normal for someone with dementia to need an EMI carehome - these have carers equipped to deal with the challenges of looking after someone with dementia much better than run of the mill carehomes or nursing homes. Have you got to source one yourself or will SS be finding a suitable place?

I wonder if you’d find speaking one of the knowledgeable people on the helpline useful ? They might be able to point you in the right direction.

 

lemonbalm

Registered User
May 21, 2018
1,799
0
Hello @Miniminx55

Good lord, please never feel you have to apologise here. You are having such a difficult time and are most certainly not being a nuisance! There are lots of us out here who understand how hard and lonely it can be dealing with these things, so keep posting for support and advice, or just to let us know how things are going. I hope that, in the right sort of home, your father will be able to settle and receive the care that he needs. I had a terrible time finding a care home which would accept my mum a few years ago but got there in the end. It's not always gone well but it's probably been as good as it could be. I had no idea at the time that people could engage an independent social worker but that sounds a good idea from @kindred.
 

Shedrech

Registered User
Dec 15, 2012
12,649
0
UK
hi @Miniminx55
what a horrible time your poor dad and you are having

you say "He has been assessed as requiring 24 hour specialist EMI dementia nursing care" .... as I understand it, the LA have to suggest at least one placement that meets the assessed care needs

this site lists residential homes

if the LA believe that your dad owns a property, ask them to arrange a deferred payment agreement so that you have more time to deal with the sale and organise payment of care fees

Admiral Nurses are there to support carers, maybe call their helpline for a chat
 
Last edited:

Miniminx55

Registered User
Jul 23, 2020
15
0
You are certainly not a nuisance and are coping with so very much. Please consider engaging a private social worker. Google it for your area. Kindredx
So sorry late to the party again been such a busy week, thank you so much for your reply and I may well look into this xx
 

Miniminx55

Registered User
Jul 23, 2020
15
0
That’s a lot to have to cope with @Miniminx55

It’s normal for someone with dementia to need an EMI carehome - these have carers equipped to deal with the challenges of looking after someone with dementia much better than run of the mill carehomes or nursing homes. Have you got to source one yourself or will SS be finding a suitable place?

I wonder if you’d find speaking one of the knowledgeable people on the helpline useful ? They might be able to point you in the right direction.
Thank you so much for replying, SS are going to be finding this but after two failed homes they have found and now the state my father is in I am terrified. I hate to be negative but my father has been failed by the system since diagnosis in January and my faith in the system has been wrecked and I feel I have let him down so badly and am racked with the guilt of watching him slowly dying and seeing him fade away a bit at at time after being my big, strong will always protect me Dad...not sure I will cope as it gets harder and harder, tomorrow I have a visit with Dad for one hour at 11am then I am going with my husband to see my Mum at 2pm for her one hour visit its exhausting xx
 

Miniminx55

Registered User
Jul 23, 2020
15
0
Hello @Miniminx55

Good lord, please never feel you have to apologise here. You are having such a difficult time and are most certainly not being a nuisance! There are lots of us out here who understand how hard and lonely it can be dealing with these things, so keep posting for support and advice, or just to let us know how things are going. I hope that, in the right sort of home, your father will be able to settle and receive the care that he needs. I had a terrible time finding a care home which would accept my mum a few years ago but got there in the end. It's not always gone well but it's probably been as good as it could be. I had no idea at the time that people could engage an independent social worker but that sounds a good idea from @kindred.
Hello finally made it here again its been another hellish and hectic week, I had no idea of the Social Worker situation either but it might be worth it as Wiltshire really are appalling. I did speak to Dorset this week who have yet again said they are more than happy to help and work with Wiltshire to source a placement as they are aware of homes in this County and I am hoping that Wiltshire take this on board. I am grateful for your advice about your Mum and its always good to know that people are around who have walked this horrid road and also understand the depth of pain of this situation. I think the hardest thing is coming to terms with the fact that my parents are not going to be here forever and I have always known that no matter what my Dad would be with me to protect me and I am terrified now I know that he is slowly being taken away from me and that I am going to be alone, so frightening but I remain committed to being his voice and support no matter what xx
 

Miniminx55

Registered User
Jul 23, 2020
15
0
hi @Miniminx55
what a horrible time your poor dad and you are having

you say "He has been assessed as requiring 24 hour specialist EMI dementia nursing care" .... as I understand it, the LA have to suggest at least one placement that meets the assessed care needs

this site lists residential homes

if the LA believe that your dad owns a property, ask them to arrange a deferred payment agreement so that you have more time to deal with the sale and organise payment of care fees

Admiral Nurses are there to support carers, maybe call their helpline for a chat
Thank you so much, I did speak to Admiral Nurses some while ago but as Dad was in the Care Home they said they could not support me only if he is in his own home. He is in the Rehab Hospital at the moment but I have no idea how long that will be so perhaps a further call may be worth attempting. With regard to the Property as my father was a joint owner as Tenants in Common I cannot see how he can be stated on the Care Act Assessment and the Financial paperwork as owner/occupier as he only owns and will only have half of the properties assets after the joint lifetime mortgage is paid off but trying to get Wiltshire Council to understand this is like trying to pull out my own teeth...very painful indeed! Thank you so much for your reply xx
 

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