My mum is 82yrs and been diagnosed for the past 2 years, although now looking back symptoms were in place before that. I have been a lurker on this site since diagnoses, but have now hit a brick wall. I am the youngest (44) of seven children and basically care has been left to me and one other brother. I have given up asking for help from my family as they all seem more than happy to watch me giving up all my time to do the job!
Anyhow, mum has a carer in for an hour in the morning and goes to day centre 4 days a week, so not too much to do as such..but its tough. She is now going to bed at, well anything from 5.00pm to 6pm, which as I work I cant keep an eye on her all the time, and the other thing, is her toileting, today I had a massive 'clean up' after mums attempt of clean up in my lunch break (she at home on Wednesdays). I just don't know what step to take next, another carer in at tea time? I feel guilty if she is having these accidents at day centre. At least the positive is that she manages to get to the bathroom. I do wonder if its down to the Donezipel tablets? D we take her off them now, has anyone had any experiences of this? Any help/advice will be gratefully received, sorry for the long post...today Im feeling at the end of my tether
Anyhow, mum has a carer in for an hour in the morning and goes to day centre 4 days a week, so not too much to do as such..but its tough. She is now going to bed at, well anything from 5.00pm to 6pm, which as I work I cant keep an eye on her all the time, and the other thing, is her toileting, today I had a massive 'clean up' after mums attempt of clean up in my lunch break (she at home on Wednesdays). I just don't know what step to take next, another carer in at tea time? I feel guilty if she is having these accidents at day centre. At least the positive is that she manages to get to the bathroom. I do wonder if its down to the Donezipel tablets? D we take her off them now, has anyone had any experiences of this? Any help/advice will be gratefully received, sorry for the long post...today Im feeling at the end of my tether