Living with incontinence
- Thread starter Beate
- Start date
My husband had pull ups (3 a day max where I live), and bag loads of the larger pads
that look a lot like an opened up nappy... (to use when we ran out of pull ups).
They delivered 3 months at a time, and these were supplied free.
I bought kylie sheets and protectors (on line) and also had a large towel/s that I tucked across the mattress,
below the sheet.
DN would come out and use a portable bladder scan, which always showed that he was not
emptying his bladder. I'm not sure if you have this facility in your area.
Eventually he got referred to a urologist who decided I could try him with convene (portable bag)
No chance, and have me fiddle with him !! .... He didn't know I was his wife ....
Doc also suggested they train me to catheterise him several times a day....
and said the NHS would supply the equipment for this.... again not an option
Soooo.... pull ups, pads, and lots of washing it was...
I had to fight to get the incontinence service in the first place.
I'd love to know who decided that 3 pads a day was your limit.
When I met with my MP I even told them this, as they had no idea.
(They had asked me what could be improved, and this was one of the list of things I gave them).
that look a lot like an opened up nappy... (to use when we ran out of pull ups).
They delivered 3 months at a time, and these were supplied free.
I bought kylie sheets and protectors (on line) and also had a large towel/s that I tucked across the mattress,
below the sheet.
DN would come out and use a portable bladder scan, which always showed that he was not
emptying his bladder. I'm not sure if you have this facility in your area.
Eventually he got referred to a urologist who decided I could try him with convene (portable bag)
No chance, and have me fiddle with him !! .... He didn't know I was his wife ....
Doc also suggested they train me to catheterise him several times a day....
and said the NHS would supply the equipment for this.... again not an option
Soooo.... pull ups, pads, and lots of washing it was...
I had to fight to get the incontinence service in the first place.
I'd love to know who decided that 3 pads a day was your limit.
When I met with my MP I even told them this, as they had no idea.
(They had asked me what could be improved, and this was one of the list of things I gave them).
I completely agree. Every service should be need-based and if you are deemed to need 6 a day that's what you should receive. But that's obviously just my opinion, the NHS have other ideas it seems - and funding issues. Though why they can provide me with Day Care and sitting service which costs an eye-watering annual sum but not with more than 2 pull-up pants a day will forever remain a mystery.
They do a bladder scan every time we go to the Continence Service and they say he's fine in that respect (I guess the Tamsulosin helps) so at least that's something I guess.
They do a bladder scan every time we go to the Continence Service and they say he's fine in that respect (I guess the Tamsulosin helps) so at least that's something I guess.
We couldn't get pants/pull ups supplied at all. it was tena slips or nothing x 3 a day.
Of course mum couldn't manage tem herself but I was glad of the provision of something.
We had a hospital bed, which had a wipeable surface, so it was sheet , topped by Bath towel, topped by Kylie sheet, which was as well as a maxi tena slip, with an added Booster pad. She still dripped all across the floor in the morning.
Of course mum couldn't manage tem herself but I was glad of the provision of something.
We had a hospital bed, which had a wipeable surface, so it was sheet , topped by Bath towel, topped by Kylie sheet, which was as well as a maxi tena slip, with an added Booster pad. She still dripped all across the floor in the morning.
I know this relates to children with disabilities but it might be of interest (could do a similar campaign.)
https://www.change.org/en-GB/petiti...continence-issues-need-7-pads-nappies-per-day
Also for day to day practicalities
http://www.changing-places.org/the_campaign/what_are_changing_places_toilets_.aspx
I have asked the continence nurse if she thinks I am selling them on......no wonder so many supermarkets sell products directly now! It is easier to buy than fighting .....perhaps that is what they want!
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https://www.change.org/en-GB/petiti...continence-issues-need-7-pads-nappies-per-day
Also for day to day practicalities
http://www.changing-places.org/the_campaign/what_are_changing_places_toilets_.aspx
I have asked the continence nurse if she thinks I am selling them on......no wonder so many supermarkets sell products directly now! It is easier to buy than fighting .....perhaps that is what they want!
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So today upon return home I was greeted by a very apologetic sitter - OH had messed himself majorly and while she told him to have a wash and changed his pants and jeans, she left him to his own devices in the bathroom and it's in a total state. The soiled pants were left in the sink, the toilet and bathtub were dirty, my white (!) rug is soiled, the towels are soiled... I've never seen anything like it. Adding to that that I got totally soaked on the way back and really needed a shower myself, I wasn't best pleased. So I put a wash on and cleaned the bathroom, then put OH in the bath as he was still dirty - what you get when you let him wash himself!
Rant over.
Rant over.
I don't really understand. What's the point of having a sitter with an incontinent person living with dementia if the sitter is not prepared to deal with the results of the incontinence?
Oh nothing worse......surely carer's realise dementia is a deteriorating condition.....things change.....thank goodness for washing machines! ( oh I am fan of a hot wash with all sorts of cleaning products......bit of an OCD cleaner....Caring for FIL with dementia and a MIL who is a hoarder hasn't helped me!)
Sent from my iPad using Talking Point
Sent from my iPad using Talking Point
Hi Beate
I have the same problem with my wife. The problem seems to be that no matter how good the pants there is a limit as to how much liquid they can hold. Currently we use pants that will hold 1.7 litres but most mornings she will have leaked.
I purchased an absorbent bed cover from MIPUK.co.uk. They also do small ones to go on chairs. I believe there are a number of specialist web sites which sell these covers. These are excellent and have a non porous backing but are not too hot.
I have put the cover on top of the sheet so that it is only the pyjamas and cover which need a rinse in the morning and the refresh cycle is fine for 2 or 3 goes.
Hope this helps.
I have the same problem with my wife. The problem seems to be that no matter how good the pants there is a limit as to how much liquid they can hold. Currently we use pants that will hold 1.7 litres but most mornings she will have leaked.
I purchased an absorbent bed cover from MIPUK.co.uk. They also do small ones to go on chairs. I believe there are a number of specialist web sites which sell these covers. These are excellent and have a non porous backing but are not too hot.
I have put the cover on top of the sheet so that it is only the pyjamas and cover which need a rinse in the morning and the refresh cycle is fine for 2 or 3 goes.
Hope this helps.
Conveens
Hi. I felt I must answer the other letters because I am in the same situatioon with my husband. We have Kylie's, Tens pads, etc, but now the continence nurse has started him on a Conveen. This looks for all the world like a condom, it is placed on the Penis and is then attached to a night bag via a tube. The bag holds 2500 mils of urine and baring accidents like the sheath/ conveen coming off, which happens occasionally, this approach is great. All the equipment is delivered to the door every month. The continence nurse in your area will tell you all about this method. it is certainly better than all that washing. Hope this is helpful.
Hi. I felt I must answer the other letters because I am in the same situatioon with my husband. We have Kylie's, Tens pads, etc, but now the continence nurse has started him on a Conveen. This looks for all the world like a condom, it is placed on the Penis and is then attached to a night bag via a tube. The bag holds 2500 mils of urine and baring accidents like the sheath/ conveen coming off, which happens occasionally, this approach is great. All the equipment is delivered to the door every month. The continence nurse in your area will tell you all about this method. it is certainly better than all that washing. Hope this is helpful.
