Hello,
I'm new to this forum and to the whole world of Dementia really. Well where to start, these things are always such a long story....
My Mum was diagnosed early last year with Posterior Cortical Atrophy which was I believe years ago called Visual Variant Alzheimer's. She also has problems with her speech now, forgetting the vital word in a sentence. Her memory is fine although there are a few short term memory issues creeping in.
She has just had new scans done and these indicate significant degradation in the areas of the brain affected by the PCA but no degradation in the area associated with Alzheimer's just yet but we've been told this may or may not happen in the future.
Its a very rare disease and her hospital only have about 4 other people with it. The trouble is she is based in France [as am I] and English language support is few and far between so it's just me and my Dad looking out for her and beginning to have an increased role in her care. I am fairly converse in French but my Mum who lives with my Dad about 10 kms from me cannot speak a word as the symptoms started coming out just as they arrived here about 8 years ago and she found it difficult. She wouldn't think of going back to the UK and the clinical care here is excellent and she has a great Consultant and GP who are fluent in English.
It's a long shot but does anyone know of any English speaking support groups in France at all?
Just wanted to say hello, it seems we are not so alone as we thought we were. Are there any other PCA sufferers and/or carers here?
Best wishes to everyone,
Kirsty
I'm new to this forum and to the whole world of Dementia really. Well where to start, these things are always such a long story....
My Mum was diagnosed early last year with Posterior Cortical Atrophy which was I believe years ago called Visual Variant Alzheimer's. She also has problems with her speech now, forgetting the vital word in a sentence. Her memory is fine although there are a few short term memory issues creeping in.
She has just had new scans done and these indicate significant degradation in the areas of the brain affected by the PCA but no degradation in the area associated with Alzheimer's just yet but we've been told this may or may not happen in the future.
Its a very rare disease and her hospital only have about 4 other people with it. The trouble is she is based in France [as am I] and English language support is few and far between so it's just me and my Dad looking out for her and beginning to have an increased role in her care. I am fairly converse in French but my Mum who lives with my Dad about 10 kms from me cannot speak a word as the symptoms started coming out just as they arrived here about 8 years ago and she found it difficult. She wouldn't think of going back to the UK and the clinical care here is excellent and she has a great Consultant and GP who are fluent in English.
It's a long shot but does anyone know of any English speaking support groups in France at all?
Just wanted to say hello, it seems we are not so alone as we thought we were. Are there any other PCA sufferers and/or carers here?
Best wishes to everyone,
Kirsty