Very peculiar

Little Circles

Registered User
Mar 30, 2017
119
0
Derbyshire
I took my Dad to the opticians as he had to have drops in his eyes so could not drive himself. A neighbour kept an eye on my Mum while we went. Mum was in bed all the time and the neighbour said she was fine and left.
All was well til I went into her bedroom and she said the doctor had been, and she was waiting for an ambulance to fetch her, she had an infection and had to go into a isolation ward as she is very contagious. She was convinced she was in her last hours in this planet.
Dad and I said that unfortunately Dad needed help around the house as he was still misty eyed from his eye drops. In 20 seconds flat she jumped out of bed and was dressed and was going to get a meal for us both !
Every morning she is in bed poorly and can’t move and by mid afternoon she seems to have ‘forgotten’ her ailments and functions more like the Mum I remember- still forgetful and sometimes can’t remember who we are but she is not ill or in bed
Yesterday she thought it was Christmas and she was getting married in the morning but in the afternoon seems more lucid
My question is has anyone else experienced sudden changes
How can she be ok when someone visits other than Dad and I and change so much with us. How can she ‘turn’ her dementia off and on but we see it but others think we imagine it as she doesn’t show how she can be to others like my brother and others in the family and hardly ever to her friends.
I feel like the health professionals only see he good side even though she has been diagnosed with Mixed Demrntia with MRI scans and memory tests and listening to Dad and myself how she is in the home.
I can’t understand how she can be one person with us and ‘not so’ with other people. Others have experienced dementia related issues but to a vet less extent. Dad is not coping though discussed respite for him but he ‘can’t sanction it’ as it would break his heart he says.
All this seems so peculiar to cope with - it seems like she has a split personality depending who she is with.
Any advice would be appreciated
 

karaokePete

Registered User
Jul 23, 2017
6,571
0
N Ireland
This is often a result of what is known as 'Hostess' mode. Its a behaviour that takes a lot of effort so can't be maintained and exhausts the person.

Anyone talking to my wife for a few minutes just wouldn't believe there is anything amiss with her. Spend a bit longer with her and reality sinks in.
 

LHS

Registered User
Oct 5, 2018
80
0
I find the same thing that my mum's dementia seems to improve massively when my brother visits 3-4 times a year and he then thinks that I am over-egging mum's condition and problems. Hostess syndrome comes up on a lot of forum threads.
 

canary

Registered User
Feb 25, 2014
25,081
0
South coast
Yes, this is Hostess mode. My mum could do this for short periods of time almost up to the end, but as time went on she could only maintain it for shorter and shorter periods of time. I dont think they do it on purpose either - it seems to be a subconscious reaction, triggered by having a non- regular person around.

Mum also used to be more confused when she woke up - it was almost as if her brain took much longer to wake up than the rest of her
 

silkiest

Registered User
Feb 9, 2017
869
0
I've never hard of Hostess mode before but it helps explain a lot of my MIL's behaviour. Infrequent visitors think she is absolutely fine. One visitor has even agreed to help her find a new dog to replace one that died earlier this year, he thinks I am exaggerating when I say she will not remember to feed it or undertake any routine care. so frustrating.
 

marionq

Registered User
Apr 24, 2013
6,449
0
Scotland
I saw this in action this morning. John was very difficult with me and I struggled to get him into the toilet and shower. The carer/nurse then arrived to take over and he was Mr Charming. They chatted away and laughed. However she was there long enough to able to see that he was disoriented and doing his best to keep up a good face.

And yes I can see how tiring it makes him to have to socialise in this way.
 

DeMartin

Registered User
Jul 4, 2017
711
0
Kent
I saw hostess mode in full force. I had shipped mum’s favourite desk from the SW to Kent.
I arrived at the CH just after the desk. Mum proudly showed it off to the manager and carers, as we moved furniture to accommodate, every drawer was opened to mum’s expression of delight.

The carers left, and mum did a total 180,, screaming at me “ how was she going to move it when she left later that day, did I think she was going to leave it” no amount of words could explain, this was early on, before I’d learnt to deflect, distract and agree.
I couldn’t get over the change from happy, proud shower off with the vicious angry women a minute later.
 

Little Circles

Registered User
Mar 30, 2017
119
0
Derbyshire
It seems that a few of you have this issue
It seems quite bizarre at times
I suppose the brain is very complex
It is very frustrating when she is with health Professionals and people she sees less often and they don’t see the true picture
Thank you for all your replies
 

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