Hello everyone. I have not posted previously but have followed threads on Talking Point for around 2 years. My dad was diagnosed with AZ several years ago after my mum and I went to see his GP in desperation. We had some pretty traumatic times before and after diagnosis until he eventually went for a month's respite after 5 nights of no sleep for my mum and a bout of increased aggressive behaviour towards her. I came across this site after a nurse in the care home mentioned sundowning which I had not heard of before. Although I have not joined in any discussions, I have found the threads about your experiences really helpful and supportive. As is often said on the site, it can be a great comfort to know that others are going through similar situations and to read how everyone has coped (or tried to). My dad sadly passed away in January after a month of continued deterioration and I find it ironic that I am now asking for your advice as I am unsure what to do to assist my mum.
My dad had an initial continuing health care assessment early in September 2016, when he was found to be eligible for a full assessment/ MDT discussion and my mum was told she would be contacted in about a month. I asked at the home in November if they had heard anything about my dad's case and was told that there was a backlog of residents to be seen. We did see social workers arriving for meetings on a couple of occasions. I rang the CCG assessor on 6th January 2017 to ask what was happening with his case and was told that a social worker had now been allocated, they were meeting that afternoon to discuss him and my mum would be sent a date for the MDT meeting in due course. I was told any funding awarded would be backdated.
Just before Christmas my dad started with mild diarrhoea. His ability to swallow then deteriorated and he had a trip to A&E/overnight hospital stay on 9th January 2017 after he was found unresponsive by care home staff and was resuscitated. He perked up briefly due to the fluids he was given but died less than 2 weeks later after his ability to swallow went completely.
I rang the CCG team a couple of months after he died to ask what was happening about his case to be told that it had been closed due to his death. I was not expecting this as I thought if he was felt to be entitled to any funding that this would have been paid to his estate as it was not his fault or that of my mum that CCG staff and social workers dragged their feet in taking forward his case. My parents have never been particularly well off (dad was just over the £14000ish limit with savings and had a very small private pension and so was partially funded by social services) and any financial assistance would have been of great help to them.
Is it correct that a person's potential eligibility for CHC funding just stops if they die before their MDT meeting has taken place? I do appreciate that it may have been decided at MDT that my dad should not get any funding. My point is that he and my mum were not given the opportunity to find out if this was the case.
I apologise for the length of my post and also if this issue has already been covered on the site. I have looked through a number of threads about CHC but have not come across anything which specifically mentions this scenario. I would appreciate comments from anyone who has gone through a similar situation, or is aware of someone who has, and thank you in anticipation of your replies.
Regards Jaydee60
My dad had an initial continuing health care assessment early in September 2016, when he was found to be eligible for a full assessment/ MDT discussion and my mum was told she would be contacted in about a month. I asked at the home in November if they had heard anything about my dad's case and was told that there was a backlog of residents to be seen. We did see social workers arriving for meetings on a couple of occasions. I rang the CCG assessor on 6th January 2017 to ask what was happening with his case and was told that a social worker had now been allocated, they were meeting that afternoon to discuss him and my mum would be sent a date for the MDT meeting in due course. I was told any funding awarded would be backdated.
Just before Christmas my dad started with mild diarrhoea. His ability to swallow then deteriorated and he had a trip to A&E/overnight hospital stay on 9th January 2017 after he was found unresponsive by care home staff and was resuscitated. He perked up briefly due to the fluids he was given but died less than 2 weeks later after his ability to swallow went completely.
I rang the CCG team a couple of months after he died to ask what was happening about his case to be told that it had been closed due to his death. I was not expecting this as I thought if he was felt to be entitled to any funding that this would have been paid to his estate as it was not his fault or that of my mum that CCG staff and social workers dragged their feet in taking forward his case. My parents have never been particularly well off (dad was just over the £14000ish limit with savings and had a very small private pension and so was partially funded by social services) and any financial assistance would have been of great help to them.
Is it correct that a person's potential eligibility for CHC funding just stops if they die before their MDT meeting has taken place? I do appreciate that it may have been decided at MDT that my dad should not get any funding. My point is that he and my mum were not given the opportunity to find out if this was the case.
I apologise for the length of my post and also if this issue has already been covered on the site. I have looked through a number of threads about CHC but have not come across anything which specifically mentions this scenario. I would appreciate comments from anyone who has gone through a similar situation, or is aware of someone who has, and thank you in anticipation of your replies.
Regards Jaydee60
