Days like this - aprilbday
(another hijacking I'm afraid)
I'm having one of those days today and it's really getting me down. I've been "coping well" so far, given up driving, got a big serious diary, have a clock that has date and day on it, got some help in the house once a week - and so forth.
But oh my, with how I am today,that's just skating the surface, 'moving the deck-chairs on the Titanic' and so forth. Everything seems impossible, confusing and very very hard to cope with.
My son's being staying with me, between homes and jobs, which has been helpful and yet not. I'm better on my own, especially when I feel down. He leaves tomorrow, (new flat and job) which means that if I need to and can afford it I can have a live-in carer here; although maybe I just need someone sensible who comes in during the day.
I've just rung a good friend who was physiotherapist so familiar with this kind of world, and she's coming round to take me out for lunch and have a moan. Thank heavens for understanding friends. Another friend was very patient and effective in helping me 'sort out my affairs'. So as I keep telling myself I have plenty to be thankful for, but myself isn't impressed!
It's a horrible condition, isn't it? Lovely to have this forum to let off steam in - we're in it together in many ways...