Hello,
When I hear of such things it makes me really angry. I'm sure the CHC/CCG's use this as an excuse to hide behind. I have POA for finance for my Dad not Health and Welfare, and so there lay the 'unlevel' playing field right from the start, no access to NH notes medical records etc. I had to inform my MP and by god he got the ball rolling. I was immediately telephoned with apology as they had not followed correct procedure by ignoring my letters and emails and informing my Dad,( very poorly with terminal cancer and later stage VasD), in his NH and not me, who attended the DST what the outcome was, and with it my right to appeal. The CH simply filed Dads letter away! Then by special (and very expensive) post I got all of Dads assessment notes and notes from the DST mtg. Then I was able to put together my appeal against refusal.
Now they are playing delaying tactics, but they will not push me away. Who else is going to act in your families best interest gillybean if not you. I am sick to death of all the hurdles and tricks being used by the NHS to try and put us off fighting for the rights of the sick and elderly.
Stick to your guns and yes everyone should be screaming from the rooftops to our MP's.
Anymore c**p from my lot and I am back to mine! They mess up and then we have to unpick it all and appeal. All of this when we are drained emotionally and physically.
Good luck Gillybean, let us know what happens.
Jane