Hi, Can anyone give me any advice as to how helpful their ALZ support workers are where they live.
I arranged to see mine to try and coax mom with her help, to attend ALZ Cafes held at my mom's local church and to any other things mom might like to do. I have managed to get mom to attend, but mom expects music every month bless her. Mom wants to keep her condition a secret from her church as her well friends help at the Alz café. So I do feel for her, and hope she will attend again for both our sakes.
The carers association that run the alz café are lovely and supportive at the cafes and hold a monthly meet up just for carers which is good.
I know the ALZ S W's are very busy and have a large area to cover, but the one I have promises to ring then doesn't, Said she wanted to visit mom on her own to get to know her for advice and support but hasn't done so as yet.
Also she told me that she would ring my son who is worried about this nan to maybe send him on a course to understand dementia, but she hasn't done this either. When I ring I'm told she is out of the office and they take my number but she never rings back. Then after 18 months from diagnosis and only having one visit, feel I'm not making a nuisance of myself.
When I arranged a meeting with her, she wanted to see us both at my moms house, then I asked if I could fill her in on how I wasn't coping to well with mom at a later date at my home.
She snapped at me and said, have you just called me round to SOUND OFF as she put it.
I'm all on my own with out family help and disability and didn't expect this reaction for simple advice. I was given a lecture on how she got up at 5am in the morning to see to her mom then went to a full time job and then came home and looked after her kids hubby and home, but had sisters etc to help. She said try and live your own life. I was told that my mom wasn't bad enough if my mom didn't want care in her home etc I just wanted support advise, should I get a job and wanted advice because we haven't been able to get her to visit for 18 months after repeated calls to the office. Have any of you had this problem. these people get paid to do a job like this and I feel if it wasn't for this site and kindness of the people and there good advice, also the carers Ass where I live I would be very depressed.
I arranged to see mine to try and coax mom with her help, to attend ALZ Cafes held at my mom's local church and to any other things mom might like to do. I have managed to get mom to attend, but mom expects music every month bless her. Mom wants to keep her condition a secret from her church as her well friends help at the Alz café. So I do feel for her, and hope she will attend again for both our sakes.
The carers association that run the alz café are lovely and supportive at the cafes and hold a monthly meet up just for carers which is good.
I know the ALZ S W's are very busy and have a large area to cover, but the one I have promises to ring then doesn't, Said she wanted to visit mom on her own to get to know her for advice and support but hasn't done so as yet.
Also she told me that she would ring my son who is worried about this nan to maybe send him on a course to understand dementia, but she hasn't done this either. When I ring I'm told she is out of the office and they take my number but she never rings back. Then after 18 months from diagnosis and only having one visit, feel I'm not making a nuisance of myself.
When I arranged a meeting with her, she wanted to see us both at my moms house, then I asked if I could fill her in on how I wasn't coping to well with mom at a later date at my home.
She snapped at me and said, have you just called me round to SOUND OFF as she put it.
I'm all on my own with out family help and disability and didn't expect this reaction for simple advice. I was given a lecture on how she got up at 5am in the morning to see to her mom then went to a full time job and then came home and looked after her kids hubby and home, but had sisters etc to help. She said try and live your own life. I was told that my mom wasn't bad enough if my mom didn't want care in her home etc I just wanted support advise, should I get a job and wanted advice because we haven't been able to get her to visit for 18 months after repeated calls to the office. Have any of you had this problem. these people get paid to do a job like this and I feel if it wasn't for this site and kindness of the people and there good advice, also the carers Ass where I live I would be very depressed.