After waiting for ss to get their act together, have been told today that they have been unsuccessful in getting a respite/residential care home suitable for my hubby. The social worker asked the CC for extra care funding, but to no avail. My husband's needs are very complex, he has no cognitive score, and requires 1-1 care which very few homes have, and the cost is extortionate, anything from £1,800 - £2,000 per WEEK. We have been assessed and been told that they expect us to pay £422 per week for his care and the CC would make this up to their rate of £468 per week, but I have searched the area for CH's and their charges are approx. £750-£800 per week for usual dementia patients, but in our case hubby is so complex that their fees would increase to anything between £1800 and £2000 per week, (that is if I can find anyone to take him. He had a bad experience whilst in respite in July (breaking two windows and putting his knee through a garden gate trying to get out) now it looks at though this will remain with him for ever.
He has calmed down quite a lot now (only being aggressive to the dog) however he needs to have a watchful eye on him 24/7. The ss are now looking out of the area, but I am sure the situation will not get any better anywhere else.
I have applied for CHC but so far I have heard nothing, and perhaps if I get anything, I am sure it wont be enough,I believe their basic is about £109 per week so together with my contribution this will still not be enough. The CC will pay just £44 towards costs and my family cannot help, as you can imagine, they have children that are at Uni and they are financial difficulties themselves !!
I am at my wits end, don't know which way to turn, I am doing my best, but there is only so much I can take, and without getting any respite I can see myself going "mad".
I would be so grateful for any advice as to what I do next. Has anybody been in a predicament like this.......
He has calmed down quite a lot now (only being aggressive to the dog) however he needs to have a watchful eye on him 24/7. The ss are now looking out of the area, but I am sure the situation will not get any better anywhere else.
I have applied for CHC but so far I have heard nothing, and perhaps if I get anything, I am sure it wont be enough,I believe their basic is about £109 per week so together with my contribution this will still not be enough. The CC will pay just £44 towards costs and my family cannot help, as you can imagine, they have children that are at Uni and they are financial difficulties themselves !!
I am at my wits end, don't know which way to turn, I am doing my best, but there is only so much I can take, and without getting any respite I can see myself going "mad".
I would be so grateful for any advice as to what I do next. Has anybody been in a predicament like this.......