Hello everyone,
So I have come here to see if you beautiful people can help me answer a dew questions. Husband was diagnosed with EOA a few weeks ago at the age of 47. Symptoms began 5 years before diagnosis. Now, I have been told that everyones progression is different. Husband had a brain scan which showed PCA. Drs said told him its dementia and then told me its Alzheimer’s when I was alone in the room. Husband asked how long do I have ? Dr said “everyone os different but just don’t thing about that, just enjoy every moment you have”. When I had a chat with him he said that she didn’t want to tell him it was Alzheimer’s as it may be too much for him. I then called the memory clinic chasing the letter she was supposed to send home stating his diagnosis and one of the ladies said, “ah yes this gentleman we were discussing in our team meeting. The letter has not been drawn up yet but just to make you aware a more detailed letter will be given to the GP compared to the one we send to you”. ( 1. Here I am thinking are they hiding something more sinister)? Secondly she asked if husband had done a POA I said no, because he is in denial. And said we will think about it next year. The lady from the medic team then said “Sorry to put it this way, but your husband may not have a year this develops very rapidly”. So I have not received the letter yet which means I am worried sick thinking there is something very wrong( been 3 weeks since diagnosis) and I have been told that the letter has been dictated and dr needs to check before sending out.
So- how do I know its PCA well the all the dr said is the PET scan showed abnormalities of the left side of the brain and some parta have been damaged. I then saw a few words on the letter from radiology and found out it was this plus what she had said. She also mentioned left side of brain has been damaged. So I am in a whirlwind. Medication was offered doprezil ( I think thats how you spell it) but husband refused.I cannot think or do my work bcz I am overthinking what is happening, I am 40 and have no idea what steps to take or how to deal with this. If it will progress rapidly why didn’t the dr say so????? Why did it have to come from the medical team at the memory clinic. I understand everyone progresses differently but can you guys at least see my point???? I am going mad I find that I am unable to cope with the not knowing everything. Please can someone shed some light. Thank you xx
So I have come here to see if you beautiful people can help me answer a dew questions. Husband was diagnosed with EOA a few weeks ago at the age of 47. Symptoms began 5 years before diagnosis. Now, I have been told that everyones progression is different. Husband had a brain scan which showed PCA. Drs said told him its dementia and then told me its Alzheimer’s when I was alone in the room. Husband asked how long do I have ? Dr said “everyone os different but just don’t thing about that, just enjoy every moment you have”. When I had a chat with him he said that she didn’t want to tell him it was Alzheimer’s as it may be too much for him. I then called the memory clinic chasing the letter she was supposed to send home stating his diagnosis and one of the ladies said, “ah yes this gentleman we were discussing in our team meeting. The letter has not been drawn up yet but just to make you aware a more detailed letter will be given to the GP compared to the one we send to you”. ( 1. Here I am thinking are they hiding something more sinister)? Secondly she asked if husband had done a POA I said no, because he is in denial. And said we will think about it next year. The lady from the medic team then said “Sorry to put it this way, but your husband may not have a year this develops very rapidly”. So I have not received the letter yet which means I am worried sick thinking there is something very wrong( been 3 weeks since diagnosis) and I have been told that the letter has been dictated and dr needs to check before sending out.
So- how do I know its PCA well the all the dr said is the PET scan showed abnormalities of the left side of the brain and some parta have been damaged. I then saw a few words on the letter from radiology and found out it was this plus what she had said. She also mentioned left side of brain has been damaged. So I am in a whirlwind. Medication was offered doprezil ( I think thats how you spell it) but husband refused.I cannot think or do my work bcz I am overthinking what is happening, I am 40 and have no idea what steps to take or how to deal with this. If it will progress rapidly why didn’t the dr say so????? Why did it have to come from the medical team at the memory clinic. I understand everyone progresses differently but can you guys at least see my point???? I am going mad I find that I am unable to cope with the not knowing everything. Please can someone shed some light. Thank you xx