Hello, I just joined this forum today. Im a carer for my mother who was diagnosed with FTD in April 2018 when she was 59 when I was 29.over the months since her diagnosis i'm been learning so much about how to adapt and help her try and have a normal life. We have a single handed DQS POC that has been working well for us until recently.
My mum has had a UTI for which she is currently on oral antibiotics, but how she is very hypoactive and I've started to notice she is unsteady on standing on her feet and climbing the stairs and even sturggling to stand up from the sofa which she didnt have a problem with a month ago. Furthermore she now finds it difficult to get into and out of the bath tub. I want to continue to look after her in her home but I was wondering whteher anyone has advise on how I can make her home more suitable for her. We dont have any medications to manage her FTD. I feel like we have falllen through the cracks of the social and health system. This week the newest change is she is now holding her spoon but unable to manoever her hand to her mouth without some guidance. This is such a devastating disease, and sometimes I cannot believe how much has changed in a year. Any advise would be great! Thanks.
My mum has had a UTI for which she is currently on oral antibiotics, but how she is very hypoactive and I've started to notice she is unsteady on standing on her feet and climbing the stairs and even sturggling to stand up from the sofa which she didnt have a problem with a month ago. Furthermore she now finds it difficult to get into and out of the bath tub. I want to continue to look after her in her home but I was wondering whteher anyone has advise on how I can make her home more suitable for her. We dont have any medications to manage her FTD. I feel like we have falllen through the cracks of the social and health system. This week the newest change is she is now holding her spoon but unable to manoever her hand to her mouth without some guidance. This is such a devastating disease, and sometimes I cannot believe how much has changed in a year. Any advise would be great! Thanks.