my mum was admitted to hospital after a seizure possibly related to a UTI not being treated for ling enough with antibiotics. The hospital are happy she did not have brain infection or stoke yet she is still semi-concious and now not eating we are unable to feed her.
We have had a job speaking to different dr’s but the consultant is charge is awful, dismissive, sarcastic just awful to deal with. The neurologist was the only one we spoke to and able to communicate the most with information we understood. And he said on Friday that she will make a full recovery, after a lumbar puncture to investigate any infections. He thought the seizures (being treated with sodium valporate) she was having were due to the UTI and now it has been confirmed that no other infections were present. However they will not let us talk to him again.
The consultant in charge says she will not recover as she is not eating or communication. He says a feeding tube has very high risks and the best they can do is to look at care after being discharged. He says the sodium valporate which does say has drowsiness, is not enough to cause her current state of sleeping a lot and when she is awake for very short periods, staring ahead of her and only very slightly acknowledging me when I talk to her or play music. He says there is now a new baseline for her.
Has anyone had any similar experiences where their loved one has still pulled through. Or if not feeding a person until they die causes pain without us necessarily seeing it. the consultant says he won’t answer questions such as this or even how long she may live for.
My heart is breaking with the situation as I was abroad for a break when her UTI got worse while my brother was looking after her. I feel i could have got a GP involved more quickly as I would have seen her UTI was not getting better. In fact it turns out her symptoms were worse but my brother didn’t report anything was worse than when I left. I want one last chance to have her back as she was before this 2 weeks ago
We have had a job speaking to different dr’s but the consultant is charge is awful, dismissive, sarcastic just awful to deal with. The neurologist was the only one we spoke to and able to communicate the most with information we understood. And he said on Friday that she will make a full recovery, after a lumbar puncture to investigate any infections. He thought the seizures (being treated with sodium valporate) she was having were due to the UTI and now it has been confirmed that no other infections were present. However they will not let us talk to him again.
The consultant in charge says she will not recover as she is not eating or communication. He says a feeding tube has very high risks and the best they can do is to look at care after being discharged. He says the sodium valporate which does say has drowsiness, is not enough to cause her current state of sleeping a lot and when she is awake for very short periods, staring ahead of her and only very slightly acknowledging me when I talk to her or play music. He says there is now a new baseline for her.
Has anyone had any similar experiences where their loved one has still pulled through. Or if not feeding a person until they die causes pain without us necessarily seeing it. the consultant says he won’t answer questions such as this or even how long she may live for.
My heart is breaking with the situation as I was abroad for a break when her UTI got worse while my brother was looking after her. I feel i could have got a GP involved more quickly as I would have seen her UTI was not getting better. In fact it turns out her symptoms were worse but my brother didn’t report anything was worse than when I left. I want one last chance to have her back as she was before this 2 weeks ago