I'm new to talking point, my partner was diagnosed with LBD 3 years ago. I've supported him pretty much alone
Its been a really difficult 3 years on so many levels, we live almost 200 miles from either of our families, his kids are only just getting there heads out of the sand. His son has treated me abominably when it came to POA. I don't have POA for my partner. So, for last the year I've been doing an 800 mile round trip every 6 weeks so that he can see his family and I can have a break. I an a prisoner of his illness like a caged bird that cannot fly.
I'm emotionally exhausted and think the current arrangements will not be sustainable as his illness progress'
so I thought about live in care as an option but perhaps this is my way of saying I need more help, that I'm struggling, that I'm trying to delay the day when he will have to move into a care home..... an almost unbearable thought at the moment. I've talked to the kids but their response only confirms they haven't a clue .
I arranged a sitter for him to free me up but he couldn't understand the need for it and it was very distressing.
My Nephew was in need of emergency accommodation and stayed for a few months but this led to suspicion and paranoia, my partner thinking I was having an affair and more recently a trusted friend was going to help out by taking him to an appointment but he really could not handle this at all. It was very distressing for us both.
So, I'm drawing the conclusion that he wouldn't be able to handle a live in carer at all no matter how it was wrapped up. If you got this far thank you for reading .
Does any one else have experience of this or can make any comment ?
Its been a really difficult 3 years on so many levels, we live almost 200 miles from either of our families, his kids are only just getting there heads out of the sand. His son has treated me abominably when it came to POA. I don't have POA for my partner. So, for last the year I've been doing an 800 mile round trip every 6 weeks so that he can see his family and I can have a break. I an a prisoner of his illness like a caged bird that cannot fly.
I'm emotionally exhausted and think the current arrangements will not be sustainable as his illness progress'
so I thought about live in care as an option but perhaps this is my way of saying I need more help, that I'm struggling, that I'm trying to delay the day when he will have to move into a care home..... an almost unbearable thought at the moment. I've talked to the kids but their response only confirms they haven't a clue .
I arranged a sitter for him to free me up but he couldn't understand the need for it and it was very distressing.
My Nephew was in need of emergency accommodation and stayed for a few months but this led to suspicion and paranoia, my partner thinking I was having an affair and more recently a trusted friend was going to help out by taking him to an appointment but he really could not handle this at all. It was very distressing for us both.
So, I'm drawing the conclusion that he wouldn't be able to handle a live in carer at all no matter how it was wrapped up. If you got this far thank you for reading .
Does any one else have experience of this or can make any comment ?