It would be nice to be able to talk to people who have Frontotemporal lobe dementia and or Motor Neurone Disease. Because there are so many things that happen during the course of the disease and it would be nice to talk to relatives and carers of the two diseases. When you are diagnosed with these diseases you feel totally alone and on your own.
I would like to know what the spouse of the sufferer thinks and deals with the thoughts that in a very short time they will be going through life with out the partner that they married, especially when the diseases can strike at such young ages. To compare notes about feelings and symptoms some people effected have during the course of their disease. To hear what might come in the future or something that you both coped with and hoe did you cope with it? Also when you were diagnosed who did you tell and how did they take it? Lastly how did your children feel when they heard the news that their father or mother had the disease and was going to change. Thanks for your help and views, best regards Oldman1952.
I would like to know what the spouse of the sufferer thinks and deals with the thoughts that in a very short time they will be going through life with out the partner that they married, especially when the diseases can strike at such young ages. To compare notes about feelings and symptoms some people effected have during the course of their disease. To hear what might come in the future or something that you both coped with and hoe did you cope with it? Also when you were diagnosed who did you tell and how did they take it? Lastly how did your children feel when they heard the news that their father or mother had the disease and was going to change. Thanks for your help and views, best regards Oldman1952.