My partner was showing signs of memory loss, but then became overwhelmingly ill due to Crohn's disease.
Whilst he was in hospital they did a brain scan without telling me, and without telling me the results. I only realised it when I saw his discharge letter some weeks later.
He had life saving surgery and a 6 hour op, leaving him with an ileostomy.
A few weeks later, we had an appt at the Memory Clinic, and he was diagnosed with vascular/mixed dementia using the brain scan taken a few days before he became life threateningly ill and his operation. In the year since, we have had no follow up appts, and I feel that the dementia is advancing quite rapidly.
I have been to the GP and whilst very sympathetic, he says there is no treatment, no cure, and basically we just get on with it.
My question is:-
Do they never do another scan? Do they never monitor the progress of this awful disease? and are we really just left to get on with it?
What experience do other readers have in different parts of the country? We are in Devon.
thanks a lot
Whilst he was in hospital they did a brain scan without telling me, and without telling me the results. I only realised it when I saw his discharge letter some weeks later.
He had life saving surgery and a 6 hour op, leaving him with an ileostomy.
A few weeks later, we had an appt at the Memory Clinic, and he was diagnosed with vascular/mixed dementia using the brain scan taken a few days before he became life threateningly ill and his operation. In the year since, we have had no follow up appts, and I feel that the dementia is advancing quite rapidly.
I have been to the GP and whilst very sympathetic, he says there is no treatment, no cure, and basically we just get on with it.
My question is:-
Do they never do another scan? Do they never monitor the progress of this awful disease? and are we really just left to get on with it?
What experience do other readers have in different parts of the country? We are in Devon.
thanks a lot