These elections are important. They bring changes.Margherita, voting is such fun
Hi. It's a real roller coaster ride isn't it. At least with a roller coaster you have a rough idea what's next.@AL60 it’s amazing and reassuring how much various posts echo peoples experiences. In this case it’s the going to bed early and ‘reading’. My OH has been going to bed earlier and earlier to read unless I can get him interested in a TV programme, not easy. I know he is not really taking it in because when we discuss the plot he can’t really remember and when he does he gets it wrong, but he enjoys it. The earliest was 7pm but he settles down at 10pm and can’t get to sleep so is up and down until I go to bed about 11-11.30pm. He is quite happy so I leave him to do as he wishes. If I have managed to control his wine intake he is up and bright at a reasonable time. Otherwise he is late up and not too good. The past three days have been good so I am hopeful that he is getting into a routine because he is such a creature of habit, quite obsessive about everything being the same.
Hi. If it was a new phase or the new medication it didn't last. Normal service resumed this morning. Don't worry, i can cope . Things could be worse. Al.Hi @AL60 ,
whatever it is, either a new phase or the effects of the meds, I hope it may last long.
Oh no, Al.Hi. If it was a new phase or the new medication it didn't last. Normal service resumed this morning. Don't worry, i can cope . Things could be worse. Al.
Hi:Hi. I had hoped we'd turned a corner and things would improve if only for a short while. People who know us often say, oh I don't know how you do it , i couldn't cope and yet you always seem fine. That's just a facade, i use humour as a shield, the real hurt is on the inside safely hidden away, eating away at you from the inside . Not much humour in this post is there. Ok then, that's enough for one night. I thought a nice early night would do me good, already its gone eleven. So, goodnight, Al. .
OTE="AL60, post: 1351433, member: 61921"]Hi again. Certainly wasn't intending to post again so soon. But as it's the wrong side of midnight and once again find sleep isn't coming easy tonight, this seemed a good idea. It's looking to me as though we really are all in this together. So many similarities everywhere on this site. It could be seen as depressing, or, it could be seen as a wealth of useful information. I have a question, and I know someone, somewhere out there will have a number of ideas and suggestions for me. Mealtimes are becoming a nightmare. Just lately the food smells funny, it's too hot ,it's not hot enough, is this the one we normally have, it just doesn't taste right, the plates, cups etc smell perfumed. To me it seems just an excuse not to eat. And believe me it's any excuse not to eat. But any amount of junk goes down a treat. I know the obvious answers, don't buy the crisps, chocolate, cake and biscuits. You try stopping her. It's like having a very grown up child. If food isn't hot enough, heat it, no, can't have that. If it's too hot , let it stand, good grief no, can't have it its too hot. You just can't reason with her. And that's only meal times. This isn't working, I'm even more awake now. The reason I'm concerned about her lack of normal appetite is over the last couple of years she's lost about forty lbs give or take. It's important too that she has a nutritional diet now more so than ever. But try telling her that. I know that there are lots of things I could try but one of the problems is that she doesn't like change. Just keeping to the tried and tested isn't working. If she had the choice she'd have beans on toast every meal. I've wondered if the dementia has altered her sense of taste. Anyway, best go now. Croissants for breakfast, can't go wrong there, can I? Al
Well, Al...for a while there, you had ‘turned a corner’. I had a friend who always used to say to me, look for the currants in the bun. So we just need to enjoy the moments when something good happens (or maybe just the absence of something bad) and the memory of those times can help to carry us through the rest of life when we are just wading through the dough!
Maybe today will have some good moments. The snow has gone from here, so at least we can get out without risking life and limb!
Hi. I'm not so sure I'm doing a great job, but I do agree there're very difficult circumstances. I also agree that the transition from husband to carer is probably the toughest job ever . Al.Hi Al
You are doing a great job in very difficult circumstances.
I don't think that I am alone in thinking that one of the most horrid aspects, is having to progress from being a husband/wife, son/daughter etc to taking on the role of carer.
No matter how good or bad the PWD is, there will inevitably be some resentment creeping in, which you then feel guilty about? I certainly do.
I don't have to deal with the aggression like yourself, but every now and again, I just feel like jumping in the car, driving off and not coming back!
Keep up the good work but take care of yourself.
Best wishes.
Phil
So do I.No matter how good or bad the PWD is, there will inevitably be some resentment creeping in, which you then feel guilty about? I certainly do.
Is there a way out?Things can't go on like this .
Hi Margherita, I guess the only way out is through....whatever the next phase of this disease holds for us.Is there a way out?
I can see none.
Al, I am writing to you, but thinking of myself
Hi again. I really feel like I've had the stuffing knocked out of me tonight. One long rage from four til eight thirty. So bad I had to ring 111 for advice. Things eventually calmed down. But you know how it is, for the rest of the evening you feel on edge, just an awful feeling. You may wonder what was the cause of all this upset? Well, i refused to give her the key to her medication box ! Cruel aren't I . She was convinced that the carer hadn't given her the tablet this morning. She had. It was so bad both my daughter and myself felt unsafe. Things can't go on like this . It's been a long night so I'll sign off now. No doubt that tomorrow morning she'll be right as rain as if nothing has happened. So, goodnight. Al. ps, i promise a happier post next time. .