Hello to anyone reading this!
I have spent the last few days feeling so low and alone. My mum is only in the early stages of AD but she has seemed worse lately and I just don't know where to turn!
I know that a lot of people on here have much worse to cope with and feel I am really letting everyone (especially my mum!) down! I just feel after a year of coping with mum alone, and 11 weeks after finally getting the diagnosis, that something has got to change but it just seems to be a case of "you need to..." and being passed from A to B all the time. I don't seem to be getting anywhere!
Don't get me wrong, the people I have spoken to have all been very kind and have told me places to contact etc. but sometimes I just want someone to say " I can..." or " I will..." . I have always hated making phone calls, I always get very anxious and panicky over what to say but feel the last year has been constant calls and I feel physically drained and feel on the verge of tears all the time. I have cried myself to sleep 3 out of the last 5 days and am getting very irritable and snappy with mum. I then feel extremely guilty as none of this is her fault it is the disease and the systems that are all so complicated!
I have filled in the forms for LPAs and have just been told mum will receive AA and extra relief for Council Tax and rent. It just seems never ending and I can't see any light at the end of the tunnel. When I read the other posts I know I have worse to come and feel so inadequate.
Thank you to anyone who has persevered to the end of this!!! I just needed to tell someone how I feel! Hopefully I will be able to sleep better now I've said it!
I will try to be more cheerful in my next post. Goodnight TP x
I have spent the last few days feeling so low and alone. My mum is only in the early stages of AD but she has seemed worse lately and I just don't know where to turn!
I know that a lot of people on here have much worse to cope with and feel I am really letting everyone (especially my mum!) down! I just feel after a year of coping with mum alone, and 11 weeks after finally getting the diagnosis, that something has got to change but it just seems to be a case of "you need to..." and being passed from A to B all the time. I don't seem to be getting anywhere!
Don't get me wrong, the people I have spoken to have all been very kind and have told me places to contact etc. but sometimes I just want someone to say " I can..." or " I will..." . I have always hated making phone calls, I always get very anxious and panicky over what to say but feel the last year has been constant calls and I feel physically drained and feel on the verge of tears all the time. I have cried myself to sleep 3 out of the last 5 days and am getting very irritable and snappy with mum. I then feel extremely guilty as none of this is her fault it is the disease and the systems that are all so complicated!
I have filled in the forms for LPAs and have just been told mum will receive AA and extra relief for Council Tax and rent. It just seems never ending and I can't see any light at the end of the tunnel. When I read the other posts I know I have worse to come and feel so inadequate.
Thank you to anyone who has persevered to the end of this!!! I just needed to tell someone how I feel! Hopefully I will be able to sleep better now I've said it!
I will try to be more cheerful in my next post. Goodnight TP x