I cared for my dad with Parkinson’s and Lewy body dementia. He was still able to manage at home with a carer going in 4 times a day. He was a very proud and clever man and he was devastated when he became i continent and needed help in the shower. He was at that stage were he was aware enough to know he couldn’t do things. He would pray at night for god to take him . I had hoped to keep him at home to the very end. He became acutely unwell with abdo pains and I called the doctor, how I wished he could have given him some morphine and relieved his pain but that was not an option. He was sent to hospital. After a time in resus they found him a bed on the ward, they gave him iv paracetamol and I was told they were treating him conservatively. I left him late at night removing his socks and putting them under his pillow as he always did. I went in the next morning to find his bed empty. A carer told me they had taken him down for an mri scan and he caused a fuss because he didn’t want to go. Why did they take him then I thought he was being kept comfortable. The junior doctor then came he was in A&E the night before. He told me my dad had arrested and died during the MRI scan . I felt so angry and cheated that I didn’t get to say my goodbye at the bedside. It has taken me a long time to come to terms with