I am worried that my 53 year old mother may have dementia.

daughter783

Registered User
Mar 13, 2013
13
0
Nova Scotia, Canada
My worries that there is a possibility that my mother, who is only 53, has dementia increased greatly over the past few days. Kind of a wake up from a couple of years of denial.

My mother lives in a rural area, about an hour and a half away from me. A little less than two years ago, her marriage with my father ended and he moved out of the house and now lives with his girlfriend. So my mom is alone. After 32 years together, she did not take the breakup well to say the least. She became very depressed, angry, and sometimes delusional about her situation, and mine and my sisters continued relationship with my father - often turning her anger on us. Because of this, I now believe that we may have missed noticing the severe decline in her memory, communication skills, and ability to care for herself.

My mom has always been a bit absent minded and forgetful. Always losing her car keys, that sort of thing. I think this may be another reason why we (the family) have passed off her behavior over the past few years as being just a part of her quirky personality.

We had noticed, more and more since my dad moved out, that she is increasingly forgetful and confused. She has an extremely difficult time communicating. It is almost impossible to follow a conversation with her. She begins her stories in the middle, and they have no ending. She forgets common words in the middle of sentences almost every time she speaks. She starts to say something, and in mid-sentence forgets completely what she is talking about on a regular basis. Every conversation I have with her is very confusing. I have to try to pick apart and dissect what she is trying to tell me, and lately I often still end up with no idea what she was talking about. She also has trouble understanding and following what I am saying to her. I have to speak slowly and over explain every detail of what I am trying to say to her. She repeats the same stories over and over and over again. And asks the same questions over and over and over again. And to follow a conversation that involves more than just her and one other person, forget it. When my husband and I, or my sister and I are in a room with her and get to talking, she is completely lost.

Her ability to care for her house is completely gone. What was once a beautiful, clean home, is now a home that would be eligible for A&E's Hoarders. It's a disaster. Junk is piled up everywhere, there are rotten food and dishes covering every inch of the house, cat food and dirt and broken glass all over the floor, the fridge is rotten. She seems completely oblivious to it. Someone who used to get embarassed over a few dirty dishes in the sink, now has no awareness that there is anything wrong with living this way. I went to visit her this weekend for the first time in 6 weeks, and was heartbroken when I walked in. I had cleaned it out the last time I was there, and it was 100x worse this time. She hadn't washed a dish, done a load of laundry, or picked up anything after herself since the last time my husband and I cleaned her house for her. I spent my entire weekend cleaning, while 7 months pregnant, and she didn't even help me. She just wandered around confused. Dropping things on the floor as quickly as I was picking them up. She sat and knitted while I cleaned. It was as if I was caring for a toddler.

She also admitted, when I was visiting, that she had a small house fire recently. She has a wood stove in her basement for heat (which worries me SO much). She told me that she set a cardboard box, filled with more cardboard for starting fires, on top of the wood stove while she was putting wood inside, forgot about it, and went to bed. She woke up and the house was completely filled with smoke (thank God my husband put fresh batteries in her smoke detectors the last time we were there). There were smoke stains all over the place when I was there on the weekend. I also watched her straighten her hair, unplug the straightener, and throw it under the bathroom sink on top of a cardboard box without giving it even a second to cool off.

Up until a couple of months ago, we thought that her strange behavior was the result of depression and anxiety over being alone. In early January, she was admitted to Mental Health at the hospital in her town because she was feeling severe anxiety. She spent two and a half weeks there. They gave her a prescription for antidepressants, and gave her vallium daily during her visit. She is still taking the antidepressants, which, based on our phone conversations, I thought were helping her. She is less angry and irrational. She doesn't snap at me and hang up the phone in my ear for no reason any more. But after seeing her over the weekend, I realize that she is worse than ever. She is very confused and I think it is dangerous for her to be alone.

I'm worried sick and was just hoping for some advice. I have already been advised to contact her GP and let him know what is going on, then try to get her in for a visit. I am in the process of doing so now. It is difficult for me because I do live in another town, and have a husband, son, and am expecting a baby in May. I'm only 28 years old, and the thought of losing my mother is terrifying. The sad thing is that I feel that I already lost her. I have felt that she has been gone for a long time now. The roles are completely reversed. It is very scary.
 

Badietta

Registered User
Feb 23, 2013
88
0
Hi there

I'm not surprised that you feel overwhelmed. You are right, it is scary. However, there could be several reasons why your mother isn't coping, only one of which is dementia. She is obviously struggling to take care of herself physically, so she might have contracted an infection which, weird as it sounds, can mimic dementia. You also mentioned that she has been hospitalized in the past and severe depression can lead to some quite out of character behaviour. Then there is electrolyte imbalance, the thyroid and ... the list is really very long.

The advice you received about contacting the GP and, hopefully, getting her there is spot on. If you are worried about her balking at going, maybe say that we, like a car, need to have an annual MOT (not sure what you call these in Canada - when the car is checked over to ensure that it is roadworthy!) and people are the same - this worked for my MIL. Also, I'm not sure how angst-ridden your parents' separation was, but if it is possible, maybe talk to your Dad. He may have insights into this that you couldn't possibly have/were protected from.

The most important thing is DON'T PANIC! It may turn out to be dementia but, then again, it could be something else entirely different.

Do let me know how you and your Mum go on.
 

Christin

Registered User
Jun 29, 2009
5,038
0
Somerset
Hello and welcome to Talking Point. I am sorry to read about your mum, this is obviously a very worrying time for you all.

I just want to pop this link in here to a fact sheet re Diagnosing Dementia. You are absolutely right to arrange for your mum to see her GP. It's also a good idea to keep a diary of any unusual behaviour which can be referred to later on.

Very best wishes to you all. I hope that TP proves to be a great source of help and support to you.
 

yorkylover

Registered User
Feb 17, 2013
35
0
57
Fareham Hants
Im so sorry to hear about your mum.Im going through something similar at the moment and just wanted you to know your not alone.

My mum to is suffering from depression and severe anxiety and vascular dementia,but the doctor said alot of her symptoms are the anxiety.Its all so hard to take in and to see your mum like that is heartbreaking.xxxxxxxxx
 

rjm

Registered User
Jun 19, 2012
742
0
Ontario, Canada
I am sorry to hear about your mum. Whatever the cause, her situation obviously needs to be addressed. Contacting her GP with your concerns is the best idea. It may help if you write down all your concerns or even keep a journal or diary where you note all her behaviours. The GP may not be able to discuss the journal with you due to privacy concerns, but can certainly read your notes and keep them in mind when he meets with her. If it has not already been done it would be a good idea to get Powers of Attorney (for both health and finance) drawn up as these cannot be done once your mum becomes incompetent.

Hope you are able to find some help for her soon.
 

Starvin

Registered User
Jan 8, 2013
170
0
N.Wales
Sorry to hear what you are going through, this is a good place to find information and let you realize you're not the only one which helped us x
 

Nik86

Registered User
Jul 14, 2017
2
0
I could have written this

I know this is an old post but it describes to a tee everything that's going on with my mum. Even down to the marriage breakdown, the hoarding, the apathy....same age as well.

It's all just becoming too much. I also have 2 very young kids.

I would love to know how your mum is doing now, did she get a diagnosis?
 

Shedrech

Registered User
Dec 15, 2012
12,649
0
UK
hi Nik86
just to let you know that daughter783 hasn't been back since 2014, so is unlikely to reply herself
I hope reading round TP is helping you see that you aren't alone facing life caring for your mum

best wishes