Hello, my name is Katy and have a wonderful husband of 47 years just admitted into a very nice nursing home. He has FTD and PPA - same as Bruce Willis if you’re not familiar. I feel so horrible, lonely, physically sick that I made this decision, but, Palliative Care/Hospice, doctors, etc. all said (a) I’m burned out (to a crisp) and (b) he’s totally nonverbal except every now and then, unsteady, Macular Degeneration (his whole family), Parkinson-like tremors (not Parkinson’s), no cognitive abilities - no memory of any kind, etc. I go every day for only an hour at lunch - he’s there 8 weeks now. I’m beyond sad. I am getting therapy and nothing helps. My boys are all a Coast away - West Coast. They’ve come in as frequently as $$$ will allow. I have zero family here anymore and 3 bff’s died in last 6 years. The ones you can count on forever and ever. I’ve had so much loss. I’m 70 and he’s 75. His mother is still living and is 100! Lives independently at another retirement community. She’s a total narcissist and I can’t stand her.
I’m trying to keep the ship afloat here, but, the cost is going to sink it, I’m afraid. I have an elder law attorney and financial advisor so I am covered on those bases for advice. I just have no friends left - at my age they’re either retiring and moving to Florida or near their grandkids or are dying of cancer, etc. I try to stay busy and remain positive - it’s not working. Any advice? I’ve read some posts and they are wonderful - that’s why I joined.
I’m trying to keep the ship afloat here, but, the cost is going to sink it, I’m afraid. I have an elder law attorney and financial advisor so I am covered on those bases for advice. I just have no friends left - at my age they’re either retiring and moving to Florida or near their grandkids or are dying of cancer, etc. I try to stay busy and remain positive - it’s not working. Any advice? I’ve read some posts and they are wonderful - that’s why I joined.