Update
I havent updated this thread because its been a bit of a roller coaster ride, and Im still not out of the woods yet. Im also taking a break from the forum and I dont want anyone worrying
Well, first the good news:
OH has swapped over his drugs completely now (although it still needs to settle down and stabilise) and the seizures seem much improved. He also seems brighter, more chatty and more lucid.
The delusion that he is fat seems to have passed, but took a fair bit of doing. Giving him smoothies worked a treat (thank you
@DawnR ) and so did giving him soup.
However, a few days after, he came downstairs while the carer was clearing up the bathroom, having got washed and dressed and instead of coming and sitting on the sofa like he usually does he headed out of the front door. I zipped out after him and found him wavering up the road with no rollator, or stick, or anything. I caught up with him and it turned out he wanted exercise because he needed to lose weight 🙈🙈🙈. The carer had come out as well and between us we got him back indoors. I then had a quick think and said we could go out a bit later as it would be best to go somewhere where the pavement wasnt so uneven. I thought if we went out he could have a walk and he might eat something while we were out (thank you
@My Mum's Daughter ) - a sort of two birds one stone scenario! I drove down to the sea front and parked behind a cafe. He walked a way (I insisted her pushed the wheelchair "just in case") then needed a rest and I asked him if he wanted to walk back or for me to push him. He opted to sit in the wheelchair himself!! When we got back to the cafe I said I wanted a drink and he said he did too, so we sat down and I grabbed a couple of menus, I chose what I wanted and he he chose something too. Result!!! It did mean that we had to go out for a walk and lunch every day for the next week or too, but it got him back to eating again. Then as his lucidity improved, he realised that he couldnt walk very far and after a fall (he was OK) he decided he didnt want to go out any more. But at least he now will eat lunch at home and that is back to normal
Now for the bad news:
As his lucidity has improved he has become much more aware of his limitations and he is becoming increasingly frustrated. A couple of his carers have told me that when they were trying to help him with something he couldnt do he got very angry with them and blamed them for being unable to do it. They both commented that it was very out of character.
Now he is more chatty he is trying to make conversation and he regaled one of his carers with a story about a pink shirt of his (he doesnt have one, and never has all the while Ive known him), but he was using the most awful racist and homophobic terms😱 I apologised to the carer who was (fortunately) understanding. He has also started using a lot of swear words.
There is another thing too, which I dont want to say, but think I have to. One evening when he had gone to bed I cold hear him talking so I went up in case he needed me. Before I opened the door, though, I could hear what he was saying. I couldnt possible relate the words on here. It was basically rape fantasy using the most appalling and explicit words. Iwas (and still am) appalled. I didnt go in. I have heard him talking to himself on other occasions since then, but havent gone to listen to what he was saying.
All of this, needless to say, is totally out of character and I am afraid of him returning to the behavioural issues that Ive had to deal with in the past. I know that he could come off these tablets again, but his seizures are so much better controlled with them and I dont know whether these thoughts were going on underneath anyway as he was previously almost mute. I dont want to have to choose between him having multiple seizures and having behavioural problems, so at the moment Im crossing my fingers (and yes, putting my head in the sand) and hoping that its just a blip and will settle down as he stabilises on this new drug
