Hello everyone,
My mum, 75, in residential care, has had an extreme reaction (drug induced parkinsons) after an increase in Aripiprazole, from 5 to 10mg.
She has mid stage mixed dementia with LBD and family (sister) who also had LBD and equally bad reactions to anti-psychotics. Mum has a lot of Frontal temporal damage, and has been upset consistently for over 12 months.
I gave all the information possible to everyone, and have got an Advocate involved, and the intense dementia service, and informed them that her sister could not walk after having respiradone (a permanent problem), and also I noticed tremors.
Mum now has cervical dystonia - head bent over completely chin to chest - - and can barely walk, and now tremors, and is in pain. I am so angry as I resisted approving this drug use for so long and gave all the information and history, but was basically cornered with either mum being sectioned or trying Aripiprazole (after bad reactions to Memantine, Respiradone, and Metazarpine).
I agreed, and they said they would go low and slow, strated on 5mg (I agreed) then the dose was upped to 10mg without my consent (I am LPA) c.2 weeks later. I had noted mum had a tremor after 5mg, and was subdued.
So my questions I guess are...
Has anyone had something similar?
Has anyone recovered from dystonia or found things to soothe it?
What actions are worthwhile to take, as I feel the proper procedure was not followed by the increase of dosage? (I don't want to waste energy on this, but it is important nevertheless).
I seem to be endlessly researching, and trying to get help and the right support.
Thank you
HX
My mum, 75, in residential care, has had an extreme reaction (drug induced parkinsons) after an increase in Aripiprazole, from 5 to 10mg.
She has mid stage mixed dementia with LBD and family (sister) who also had LBD and equally bad reactions to anti-psychotics. Mum has a lot of Frontal temporal damage, and has been upset consistently for over 12 months.
I gave all the information possible to everyone, and have got an Advocate involved, and the intense dementia service, and informed them that her sister could not walk after having respiradone (a permanent problem), and also I noticed tremors.
Mum now has cervical dystonia - head bent over completely chin to chest - - and can barely walk, and now tremors, and is in pain. I am so angry as I resisted approving this drug use for so long and gave all the information and history, but was basically cornered with either mum being sectioned or trying Aripiprazole (after bad reactions to Memantine, Respiradone, and Metazarpine).
I agreed, and they said they would go low and slow, strated on 5mg (I agreed) then the dose was upped to 10mg without my consent (I am LPA) c.2 weeks later. I had noted mum had a tremor after 5mg, and was subdued.
So my questions I guess are...
Has anyone had something similar?
Has anyone recovered from dystonia or found things to soothe it?
What actions are worthwhile to take, as I feel the proper procedure was not followed by the increase of dosage? (I don't want to waste energy on this, but it is important nevertheless).
I seem to be endlessly researching, and trying to get help and the right support.
Thank you
HX