Anyone who is interested A lifelong friend and me can be found here:
A lifelong friend and me | Dementia Support Forum (alzheimers.org.uk)
I had to stop writing my old thread because it came at a time when everything felt broken, including myself. I think I was by the end of it grieving the loss of my wonderful mum to the cruel grip of dementia and huge change that came sweeping everything away from what was previously safe and assumed to be unbreakable -my relationship with my mum, the loss of the family home and the bitter dispute with my brother and his wife that had by that stage already left us estranged. I felt completely devastated, alone and facing a whole load of new stuff including selling our family home, moving to a new place and being unable to unbox what was left of my parent’s belongings, all sentimental of course. Then the pandemic hit which saw me witness the unnecessary demise of my own mother, who when she became unwell and I was allowed in to visit her held my hand and said ‘I’ve missed you Simon’ -that was the last time my mother ever truly recognised me. The pandemic and the idiotic public health advisors and government officials destroyed a fair portion of people’s lives living with dementia and I will never forgive those responsible for such an inadequate response that saw our loved ones decline and even die. I fought the local authority and got mum care at home and then fought again to get emergency placement for my mum when things became unmanageable and then I dealt with the NHS CHC amongst other matters in between including the passing of my sister who I also loved very much and now I am here, on the other side of there -if that makes any sense at all.
At 8 years I am still walking this path and I am still trying to fathom why I feel such a close bond with my mum and why despite how hard I try, I just can’t let go.
A lifelong friend and me | Dementia Support Forum (alzheimers.org.uk)
I had to stop writing my old thread because it came at a time when everything felt broken, including myself. I think I was by the end of it grieving the loss of my wonderful mum to the cruel grip of dementia and huge change that came sweeping everything away from what was previously safe and assumed to be unbreakable -my relationship with my mum, the loss of the family home and the bitter dispute with my brother and his wife that had by that stage already left us estranged. I felt completely devastated, alone and facing a whole load of new stuff including selling our family home, moving to a new place and being unable to unbox what was left of my parent’s belongings, all sentimental of course. Then the pandemic hit which saw me witness the unnecessary demise of my own mother, who when she became unwell and I was allowed in to visit her held my hand and said ‘I’ve missed you Simon’ -that was the last time my mother ever truly recognised me. The pandemic and the idiotic public health advisors and government officials destroyed a fair portion of people’s lives living with dementia and I will never forgive those responsible for such an inadequate response that saw our loved ones decline and even die. I fought the local authority and got mum care at home and then fought again to get emergency placement for my mum when things became unmanageable and then I dealt with the NHS CHC amongst other matters in between including the passing of my sister who I also loved very much and now I am here, on the other side of there -if that makes any sense at all.
At 8 years I am still walking this path and I am still trying to fathom why I feel such a close bond with my mum and why despite how hard I try, I just can’t let go.