Hello, quick question for anyone that is kind enough to share:
We are caring for a PWD at late/end of life stage, at home, as discussed with Dr & family.
As expected in this stage, she is often unable to eat, and other days she only eats just a few spoons of soft foods. We've requested prescription from the Dr for fortified/enriched drinks, which was tried to push through by the Dr & pharmacy, but got denied in the system...
So my thinking is we can order some ourselves, but I wanted to ask which kind of fortified/enriched drinks are normally used/recommended (I realize it's not going to change a whole lot as we are in a downward spiral, but I really want to at least try to give her something with some decent nutritional value, not just a sugary/chemical ****-storm sports drink).
As an aside: I'm massively disappointed in the lack of medical support we are getting in the home setting. It's been an endless battle for 4 years, including getting a diagnosis which took years in itself, then prescribing inappropriate medications which we had to ask for different options, then they keep saying they will send out a nurse to assess things so we can get better support, and nothing happens for months, no matter how much we keep asking for an end of life assessment. Now they are even denying fortified drinks for someone who is struggling to eat?! How am I supposed to have faith that they will support her in a timely manner with pain medication etc as needed if her breathing declines or she is in distress going forward? -
Sorry... I'm just needing to vent today.
We are caring for a PWD at late/end of life stage, at home, as discussed with Dr & family.
As expected in this stage, she is often unable to eat, and other days she only eats just a few spoons of soft foods. We've requested prescription from the Dr for fortified/enriched drinks, which was tried to push through by the Dr & pharmacy, but got denied in the system...
So my thinking is we can order some ourselves, but I wanted to ask which kind of fortified/enriched drinks are normally used/recommended (I realize it's not going to change a whole lot as we are in a downward spiral, but I really want to at least try to give her something with some decent nutritional value, not just a sugary/chemical ****-storm sports drink).
As an aside: I'm massively disappointed in the lack of medical support we are getting in the home setting. It's been an endless battle for 4 years, including getting a diagnosis which took years in itself, then prescribing inappropriate medications which we had to ask for different options, then they keep saying they will send out a nurse to assess things so we can get better support, and nothing happens for months, no matter how much we keep asking for an end of life assessment. Now they are even denying fortified drinks for someone who is struggling to eat?! How am I supposed to have faith that they will support her in a timely manner with pain medication etc as needed if her breathing declines or she is in distress going forward? -
Sorry... I'm just needing to vent today.