So unfair!

[Quite contrary]

My husband is 74, me 70 and we have been together for 43 years. Throughout that time he has suffered with poor mental health with a variety of 'diagnoses' and unsuccessful medications. In 2011 our own daughter suggested Asperger's (she had researched autism spectrum disorders extensively for her education degree) and this was confirmed as probable by the Autism Society. Following on, we had the best few years of our whole time together. Then in 2017 we noticed increasing problems with memory, which was diagnosed in 2018 as Alzheimer's - so unfair! In shock for many months until I found this website and in addition noticed that Memantine was keeping him fairly calm and stable, although naturally there has been some progression since. Now we have cancer thrown into the mix! He developed a tongue 'ulcer' about 5 weeks ago and was seen by a specialist yesterday, who said she is 95% sure that it is cancer. I do not know if he has taken in what was said or even remembers seeing her. How do we navigate the coming months of investigations, treatment etc. Feeling totally at sea! Oh, and I am also supporting, by phone mainly, his younger brother who is undergoing treatment for advanced bowel cancer.

 

[Izzy]

Oh @Quite contrary how incredibly sad and so hard for you too.

I’m glad you’ve shared here as I know you’ll find so much support and understanding. I wondered if it would also help to have a chat with someone on the Admiral Nurse support line -

Admiral Nurse Dementia Helpline

Call or email our Dementia Helpline/Alzheimer’s Helpline for reassuring and practical advice from our specialist team of Admiral Nurses.

www.dementiauk.org

 

[Quite contrary]

Thank you @Izzy for your empathy. I was wondering whether to ring them, so now you have said about it, I will definitely do that tomorrow morning, perhaps while hubby is still asleep (if they will be open then).

 

[Izzy]

Thank you @Izzy for your empathy. I was wondering whether to ring them, so now you have said about it, I will definitely do that tomorrow morning, perhaps while hubby is still asleep (if they will be open then).

Just had a look at their opening hours -they are open tomorrow -

Our opening hours​

• Monday to Friday 9am-9pm
• Saturday and Sunday 9am-5pm
• Open bank holidays (9am-5pm), except 25th December

I hope you find them helpful.

 

[Quite contrary]

Just had a look at their opening hours -they are open tomorrow -

Our opening hours​

• Monday to Friday 9am-9pm
• Saturday and Sunday 9am-5pm
• Open bank holidays (9am-5pm), except 25th December

I hope you find them helpful.

Thank you