Mum and I took part in a medical research program related to Dementia for three years. I am not sure what I would have said if I had been asked to agree to a tissue donation after death, but I would have been happy to be verbally approached by a member of the Research Team after the project had been running for say two years and it was obvious to the team that I was committed to the project. I definitely would not have liked to receive a letter through the post cold.
What saddened me was that the research program finished just as mum’s mental health got really bad, and I never heard a word about what the research had indicated.
Best wishes
Clive