It is a very long time since I registered to be on the support forum and my darling mum died two years ago aged 97. I did not have a clue about CHC Funding until they turned her down. So I researched, read endless articles. What I have learned is never give up. It is not the the condition of Dementia but the system of CHC Funding. In my opinion CHC Funding is on par with the Post office scandal. It was not the Postmasters but the system that is at fault. The whole CHC system is set up to deny CHC funding for the most vulnerable in society. It is indeed a National scandal. After going through the whole appeal process The Independent Review panel found that my mother's assessment was 'unsound'. She received reimbursement of her fees for the assessed period. The key is the |Care Act 2014 S22. The LA is restricted in terms of what services it can provide. ie Social Care as opposed to Nursing Care. I am now at the beginning of a Retrospective Review for an unassessed period of care. The whole process to date has taken over 3 years and I ask myself why am I doing this. I am doing this because it is just plain wrong, in my view the system is corrupt. The system is so complex, even the assessors at times do not understand it. In my view the NHS is discriminating against people with Dementia and have virtually privatised dementia care. Whole teams in every county have been set up by the Government/NHS to manage the system, which is slanted against the person with dementia. Must cost billions. they all have their own management system, assessors and administrators. It is in deed a National Scandal. Write to your MP's (I involved mine and he was very helpful)). Never ever give up, keep going, understand the impossible and fight for your loved ones rights.