I received this email this morning which some of you might be interested to see.
The Association for Frontotemporal Dementias (AFTD) is considering changing its name.
What do you think?
During the last few years, scientific language relating to FTD has changed and continues to evolve. What was once called Pick’s disease or frontotemporal dementia is increasingly referred to as frontotemporal lobar degeneration (FTLD), in reference to the disease process at work in the brain. Under this broad umbrella there are several clinical subtypes, including: behavioral variant frontotemporal dementia (bvFTD), primary progressive aphasia (PPA), semantic dementia (SD), FTD-ALS, corticobasal degeneration (CBD), and progressive supranuclear palsy (PSP).
As many of you know, AFTD’s Board of Directors recently crafted an aggressive Strategic Plan that will guide our initiatives over the next several years across the broad range of our mission: Research, Support, Education, Awareness and Advocacy. We work to support both “Care and the Cure” on behalf of all people affected by frontotemporal lobar degeneration—regardless of the specific symptoms they experience or the specific clinical diagnosis they are given. We have important work to do, and we invite partners from all areas of this spectrum to join us in achieving these goals.
With all of this in mind, The Association for Frontotemporal Dementias is carefully considering a change of name. In doing so, our desire is to:
be consistent with evolving scientific language
eliminate a term with which many caregivers and patients do not identify
be inclusive of all of the FTD subtypes
The names under consideration are:
The Association for Frontotemporal Degeneration
The Association for Frontotemporal Diseases
The Association for Frontotemporal Disorders
As a member of the FTD community, your opinion on this subject is important to us. By following the link below, you are able to tell us what you think - in as little as a minute. By answering four simple questions and, if you wish, providing any additional comments, you will help us as we carefully consider this important change.
Thank you in advance for your participation.
The Association for Frontotemporal Dementias (AFTD) is considering changing its name.
What do you think?
During the last few years, scientific language relating to FTD has changed and continues to evolve. What was once called Pick’s disease or frontotemporal dementia is increasingly referred to as frontotemporal lobar degeneration (FTLD), in reference to the disease process at work in the brain. Under this broad umbrella there are several clinical subtypes, including: behavioral variant frontotemporal dementia (bvFTD), primary progressive aphasia (PPA), semantic dementia (SD), FTD-ALS, corticobasal degeneration (CBD), and progressive supranuclear palsy (PSP).
As many of you know, AFTD’s Board of Directors recently crafted an aggressive Strategic Plan that will guide our initiatives over the next several years across the broad range of our mission: Research, Support, Education, Awareness and Advocacy. We work to support both “Care and the Cure” on behalf of all people affected by frontotemporal lobar degeneration—regardless of the specific symptoms they experience or the specific clinical diagnosis they are given. We have important work to do, and we invite partners from all areas of this spectrum to join us in achieving these goals.
With all of this in mind, The Association for Frontotemporal Dementias is carefully considering a change of name. In doing so, our desire is to:
be consistent with evolving scientific language
eliminate a term with which many caregivers and patients do not identify
be inclusive of all of the FTD subtypes
The names under consideration are:
The Association for Frontotemporal Degeneration
The Association for Frontotemporal Diseases
The Association for Frontotemporal Disorders
As a member of the FTD community, your opinion on this subject is important to us. By following the link below, you are able to tell us what you think - in as little as a minute. By answering four simple questions and, if you wish, providing any additional comments, you will help us as we carefully consider this important change.
Thank you in advance for your participation.
