I was diagnosed with Lewy Body Dementia in 2004 but nothing had prepared me for what was happening or in deed what was to come in the future. I was shocked at just how things could change in a persons life once this illness kicks in.
On one occasion I got on a bus, and then returned home on the next bus because I was unsure as to what I was looking for, but this was before I was given Rivastigmine.
I have in this time managed to get lost on three occasions, why out shopping. However some of the large shopping centres seem to have colour coded car parks, which is fine when you can remember things perfectly, but not to us.
Things got so bad that when I go to the large metro centre, I go by bus as there is only one bus station, and I tend now to go with my wife.
On another occasion I went for a walk in our local park, and the noise of the wind in the trees totally spooked my and I tried to run home. I was then told by my consultant that my hearing had become acute through the Lewy Bodies, and that had made the trees sound louder than normal.
I have tried all sorts of things to help, including carrying my mobile phone everywhere I go, but sometimes things just work against us no matter what we do.
Our local County Council has now pioneered a trial with the BUDDI system, and those who have this illness can join up and try the tracking devices free of charge, so it seems people are starting to realise that we need help to carry on with our freedom to walk where we want for as long as we wish.
Ken
On one occasion I got on a bus, and then returned home on the next bus because I was unsure as to what I was looking for, but this was before I was given Rivastigmine.
I have in this time managed to get lost on three occasions, why out shopping. However some of the large shopping centres seem to have colour coded car parks, which is fine when you can remember things perfectly, but not to us.
Things got so bad that when I go to the large metro centre, I go by bus as there is only one bus station, and I tend now to go with my wife.
On another occasion I went for a walk in our local park, and the noise of the wind in the trees totally spooked my and I tried to run home. I was then told by my consultant that my hearing had become acute through the Lewy Bodies, and that had made the trees sound louder than normal.
I have tried all sorts of things to help, including carrying my mobile phone everywhere I go, but sometimes things just work against us no matter what we do.
Our local County Council has now pioneered a trial with the BUDDI system, and those who have this illness can join up and try the tracking devices free of charge, so it seems people are starting to realise that we need help to carry on with our freedom to walk where we want for as long as we wish.
Ken